ENDO Messages for February, 2007: Re: CLAIMING BENEFITS (Ł) IN ENGLAND FOR ENDOMETRIOSIS....THIS IS A DISABILITY

Re: CLAIMING BENEFITS (Ł) IN ENGLAND FOR ENDOMETRIOSIS....THIS IS A DISABILITY

From: Elisa (anonymous@obgyn.net)
Tue Feb 27 14:55:58 2007

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Hi Marie~

I know this can be VERY Frustrating especially when it comes to disabilty. I can only speak for me and from the States. It is a VERY long and hard process. Overall it takes at a minimum a year and that is just a standard process to weed out people through the system.

I was awarded for Endometriosis back in the mid 90's. Then I was able to utilize their trial work program which is now called a ticket to work program which encourages disabled people who are young to try to have some type of existence in the world inspite of this debilitating disease. Unfortunatley, in my case when I used the program after 5 years it came up for review which I had thought at the time I was doing OK so I chose to come off. I had and still have all my medical records as supporting documents and I know some people think the Dr.'s need to literally write that a person is disabled. The system looks at everything and sends forms to the Dr.'s as well to fill out and if we do our part and submit our evidence hopefully the two worlds come together.

I have been waiting a year again in March. I just had my hearing before a Judge. It was great because I believe they truly came away understanding this disease. The judge couldn't believe the amount of surgeries I have had. To us it's nothing because we keep having them in hopes that the next one will make a difference and help. He was understanding and even said the vocational witness didn't need to question me because in the end doing sedentary work with this disease and the medicines is just plain hard to do (again we all are different) but I believe it can continue to be recongnized. We pay into it. If we have exhausted all medical options and invasive and non invasive methods are not working something isn't right and we must look into our options further. When we are bed ridden at times and can't even stand up more than 2 hours before lying down, medicines, pain mangement, ER visits and so much more there is clearly grounds for filing the application for review. I have found that getting a good attorney who works with the system (I am not sure how it works in England) but here they do it on a no recovery no fee system.)

I am not condoning anyone abusing the system at all, but if someone is disabled it doesn't hurt to look into this process and see if you qualify. This is a disease without a cure. They do look at it like a benign form of cancer. The hysterectomies we have are a form of casturation. I have found that some give up on the system because of the amount of paperwork and time it takes here to file. I believe there are many women out there who qualify and don't even know they have this option. The best thing I can suggest for you and anyone is to make sure you get all copies of your medical records from as far back as possible. Keep them in a 3 ring binder. Get an attorney who can help you file this and lighten your emotional and physical load through this process. Have them look up the past cases in the area you are in for past awards for this disease. If you need to go before a Judge it's OK. Get articles ready and keep them in your binder that pertain to your case. We are so well informed especially through links like on this forum. Remember, we don't choose disability, it's chooses us. What we do with that opportunity is up to each of us. It's hard and emotionally draining as well as physically because you feel like no one is listening. I promise if you give it your all and get some good help behind you with someone who specializes in this field it can make a difference.

I found that in this refiling for me that there isn't really a cookie cutter slot we fit into period. I hope in time to write the SSD Administration as they encourage us to write with our thoughts on how to make a difference on disability and it's processes. I want to let them know what to expect when receiving possible endo claims and maybe some areas of reconsideration they can possibly give others. As each of us are different with how medicines effect our bodies, the same is with our disability. It's hard for anyone to say to a person who has had minimal amount of surgeries that they don't qualify when they are not seeing the whole picture for that person. I have come fully loaded from the STAGEIVPLUS factor in my case and they just shift my paperwork out there not because I wasn't really disabled but because it didn't fit their guidelines. I welcomed the chance to go before the judge because it didn't make sense how this doesn't qualify with all the supporting documents saying so. It didn't make sense that I used their program and it's causing me problems again. I discovered it's just the process. It wasn't that I am not disabled.

I hope this makes some sense. If a person gets rejected it's not personal it's the process. If more applications come through over time then they (the Adminstration) can get better familiar with this disease and the long term effects it has. I am happy to help anyway I can for you. It is a debilitating disease and it's clearly documented, the question each of us has to decide is it worth the fight. I understand all those who choose not too because it is VERY tiring but I just couldn't sit back and let this disease define us here at home.

If I can help you or anyone please do not hesitate to write me at stageivplusisus@gmail.com. I can't remember the name of the first women who got it in California in the early 90's but I have to thank that person for the rest of my life for inspiring me to go forth and be the first for Illinois. Together we can make a difference!! :)

I am here for you..

-- Elisa

At Tue, 27 Feb 2007, marie wrote: > >ENDOMETRIOSIS IS A DISABILITY...........SO WHY ARE US WOMEN >SUFFERING.....WE PAY MONEY OUT FOR TREATEMENT AND WE ARE TOLD IT IS A >DISABILITY....WHY DO WE PAY FOR A DISABILITY ???????????.......DOES THIS >NOT MEAN WE SHOULD HAVE SOME KIND OF FINACIAL HELP.....I HAVE HAD TO CUT >MY HOURS DOWN AT WORK AND EVEN TIME OFF WORK ILL....THIS IS NOT WHAT I >WANT TO HAPPEN.....IM 22...IVE BEEN DIAGNOSED SINCE DECEMBER 2000 AND >IVE HAD 5 LAPAROSCOPIES AND AM NOW IN MY 5TH MONTH OF LUPRON.......( >WORST TIME OF MY LIFE ).........ALL I WANT TO KNOW IS IF THERE IS >ANYTHING I CAN CLAIM FOR THIS DISABILITY IN ENGLAND CAN SOMONE PLEASE >HELP ME........CONTACT ME @ > >-- >MARIE1PHILIP@AOL.COM > > ...........ANY HELP AT ALL WILL BE VERY MUCH APPRECIATED.....XXXXXXXX >

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