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Re: Sciatia Endometriosis . . . . .also Hysterectomy decisionsFrom: Bea (anonymous@obgyn.net)Tue Feb 27 12:43:46 2007
At Wed, 7 Feb 2007, twila wrote: > >Thanks for providing so much info!!! It has really been useful. I guess >I'm not going to know exactly where all I have Endo until they go in >surgically . . .I wish there was another way for them to determine >this. :( I'm doing everything I can to try to align myself with an Endo >Specialist rather than a Gyno to do the surgery . . .but even trying >to get into see a Gyno has been rather challenging, due to referrals, >wait lists etc. I'm really hoping that this process will start to go >faster,and that I'll be able to get in for surgery soon. > >I want them to find and remove the Endo from all areas and am also >condsidering having a full Hysterectomy done as well. I am only 28, but >my reproductive organs have been compromised for so long (with some >other issues as well as Endo) . . .as well I had cancer of the >Lymphatic system a few years back . . .which I've recently discovered >could also be somewhat a result of having a bad Endo condition. >Appartently it can cause you to become more suseptable to getting that >type of Cancer. I feel like I'm definately leaning to having a full >hysterectomy done too, even though it obviously has it's own cons, I >think it might be the best chance I have at getting my health balanced >out and reducing my risk of getting cancer again etc. > >I would be so grateful to hear about anyone else's choice to either have >or not have a hysterectomy. Hearing real experiences from other woman >who have had to make that decision would be really helpful. > >Thanks!! > >-- >twila > >At Tue, 6 Feb 2007, D wrote: >> >>You may have already seen my post in the "Leg Pain" thread from earlier >>this week, but here it is again just in case: >> >>http://forums.obgyn.net/endo/ENDO.0702/0219.html >> >>Leg and back pain are often caused by endo behind the peritoneum (inside >>which are the stomach, liver, small intestines, uterus, ovaries, etc.). >>Most doctors look at the organs inside the peritoneum - not behind it, >>where endo can grow on nerves, ligaments, ureters, etc. >> >>My personal experience has been that most doctors I've seen will >>acknowledge that in theory endo can grow just about anywhere in the body >>- but in practice they tend to deny a patient has endo in an unusual >>place. I've had many doctors try to tell me my problem was IBS, even >>though I told them repeatedly I was neither constipated nor did I have >>diarrhea (GI tests later confirmed it wasn't GI-related). When I >>brought up the possibility of endo on my colon/intestines these doctors >>brushed it aside as too unlikely, too rare to be my problem (I'm still >>waiting for surgery to find out). >> >>Not all doctors think like that, but you have to talk to them and decide >>how well you think they understand endo. I tried to go through the HMO >>doctors, but couldn't find one in network that really specialized in >>treating endo. There was a "pelvic pain specialist", but that isn't the >>same! I went out of pocket to an endo specialist for a consult and >>decided I'm going to do whatever is necessary to have surgery with him. >> >>Good luck finding your specialist! Have you tried the "endodocs" yahoo >>group? There's a link to it at the bottom of this message - it's >>dedicated to helping women find endo specialists. >> >>Hope this helps! >> >>At Tue, 6 Feb 2007, twila wrote: >>> >>>After reading up on a lot of info posted by people on this forum, (thank >>>you!!) I have stumbled across another type of Endo that I had never >>>heard of. I'm surprised that all these years of living with excessive >>>leg pain none of the gyno's ever mentioned "Sciatia Endo" before . . >>>.and I'm wondering if anyone here has went thru this particular type of >>>Endo or could shed some light on it for me. I would really appreciate >>>it. I'm trying to find a specialist to go to here in Canada and in the >>>meantime have found this forum so helpful. I really appreciate all of >>>you and the experiences you have shared on this forum. The Gyno's had >>>never even mentioned that Endo can be found in other areas of the body, >>>so this is all new news to me, even though I've been living with Endo >>>for several years. >>> >>>Thanks, >>> >>>-- >>>twila >>> >>-- >>Find an endo specialist in the ERC's EndoDocs group: >>http://groups.yahoo.com/group/EndoDocs/ >> >>Try an excellent endo support group: >>http://groups.yahoo.com/group/erc/ >>
-- I also have symptoms of sciatica and have been sent to a neurologist and orthopedic doc. I, too, believe this is due to my endometriosis or the surgery that I had.
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