ENDO Messages for February, 2007: Re: Free Fluid in Pelvis: PLEASE HELP!!

Re: Free Fluid in Pelvis: PLEASE HELP!!

From: Nicole (anonymous@obgyn.net)
Mon Feb 26 22:29:46 2007

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In reply to: sheila: "Re: Free Fluid in Pelvis: PLEASE HELP!!"

I've had so many doctors seem completely unconcerned by the fact that I have Endometriosis, just as in your case. I don't know how many times I've been in the ER complaining of severe pain (usually a ruptured cyst which can leak fluid into the pelvic are and cause severe pain, infections, fever etc.) I get abnormal sized cysts which rupture all the time. I know exactly what they feel like and the signs/symptoms. The doctor's always shrug and say "well Endometriosis probably has nothing to do with this, you probably have appendicitis" I'm like HELLO I have ENDOMETRIOSIS, and I do not have appendicitis...I have no appendix! Endometriosis is serious! Why won't you listen to me! And the truth is most doctors don't know crap about it! So when a doctor shrugs, or seems totally unconcerned get rid of 'em. I've gotten to the point where I don't trust anything a doctor says (yes this is sad) but I've been told more lies than truth. Unless I'm talking to an Endo expert. Even if your doc is an OBGYN...I've found most know little about Endometriosis(also very sad). I once went to an OBGYN who listed on her website bio as having experience with treating Endo. When I saw her, she looked at me shrugged and said "Well, Endometriosis is tough to treat, so there's not much that I can do for you" I was appaled...needless to say I never paid her 350 dollar fee to hear her blow wind at me! I simply never went back to her and looked for another doc. It's ironic that a lot of the women I talk to who have Endo, don't have a good GYN, or they go through like 10 or 20 before finding a good one that knows about Endo. I couldn't believe this woman claimed to be "experienced treating Endometriosis" and she basically said-sorry I can't help you because I don't know anything about treating Endo, I lied. Anyway...I would suggest that if you are not happy with your doctor (for whatever reason, even if you've been with her/him awhile) go seek out a doctor who is an expert in Endo. I don't think it is something to shrug off for example, if you are getting free fluid in your pelvic area. It is very common for women with Endo to get large abnormal cysts which rupture and cause free fluid in that area. My guess would be that this is probably what is causing the free-standing fluid you have. If you want to talk to me more about this problem feel free to email me: "meenee@gmail.com" I have a long history of ovarian cysts/ruptured cysts, endometrial cysts, so I can tell you all about 'em. Grrr it makes me so upset to hear about doctors like this...at least she could have said "sorry I'm not sure what is causing this, but you may want to see a specialist since I'm not that familiar with Endometriosis. As women with this disease, we need to learn as much about it as possible, so we can protect ourselves from mis-information and those doctors who may do more harm than good. When in doubt, seek another opinion. Good luck with everything. -Nic

At Fri, 23 Feb 2007, sheila wrote: >
>At Sun, 24 Jul 2005, michele wrote:
>>
>>I had a CT scan done a couple of months ago due to GI problems I was
>>experiencing, and have been experiencing for quite some time. My scan
>>also revealed fluid in my pelvic region....and like you, I paniced.
>>However, when I went back to the doctors how ordered the results, she
>>was completely unconcerned. She did seem to care or think anything of
>>the fact that I have endometriosis, and I was still concerned because I
>>was disappointed with her lack of acknowledgement of the fluid, so I
>>went to my OBGYN to discuss it. He, too, was unconcerned, and said it
>>could be the result of a ruptured cyst. He also ordered a pelvic
>>ultrasound to make sure I did not have anymore cysts. I felt happy
>>after my visit with him because he is a great doctor, and he ordered the
>>ultrasound as well. Just as someone else replied, I'm sure if there was
>>a reason for concern they would've directed you to the hospital. But I
>>agree, waiting is the worse, especially if you're the type of person
>>like me who always thinks the worst. I had to wait a few days as well
>>and was frustrated, but like I said, nobody was too concerned. Hope
>>this was helpful.
>>At Fri, 22 Jul 2005, Jill wrote:
>>>
>>>Hi All,
>>>Has anyone had a CT scan that showed free fluid in the pelvis? My scan
>>>was yesterday by my GI's request. She is sending the results back to my
>>>GYN. They feel it may be a burst cyst. I started my period, too. Can
>>>a period contribute to free fluid? This is my first period after six
>>>months of Lupron therapy.
>>>
>>>I've had endo problems for a long time now, but free fluid freaks me out
>>>b/c I was bleeding internally from a ruptured ectopic preg. for 10 days
>>>and almost died in Dec. 04. I know I am not preg. now.
>>>
>>>I'm shaking right now; I'm so scared. I just called my GYN to give her
>>>the heads up about the CT results, but it's Friday at 4pm. I'm not
>>>expecting a call back, even though I let her know how important it was
>>>to me.
>>>
>>>Any information anyone has on this subject would be much appreciated.
>>>Why did I have to get this news on a Friday afternoon??!!
>>>
>>>Help!
>>>
>>>--
>>>Jill
>>>
>>>--
>>>Jill
>>>
>I know exactly what you mean about being upset over having free floating
>fluid in the pelvis. I had a ct of the the right hip to rule out a
>orthopedic problem but all that showed up was FREE FLOATING FLIUD IN MY
>PELVIS !!!!!! I had never heard of this before. I did think the worst,I
>saw my doctor who ordered an ultrasound of the pelvis that showed the
>same.So now I am to have a ct of the pelvis.I searched the internet for
>days to even find this problem, which I have yet to do. Reading your
>e-mail at least gave me some hope knowing that someone else has at least
>heard of this problem.I wish you the best with your situation.I will
>follow up with the ct scan. The lack of concern that my doctors are
>showing may be a good sign as well.I do wish that some information out
>there did exist for this problem. good luck
>
>--
>sheila
>

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Previous message: Elisa: "Re: Anyone get fevers? - Sweating and Hot"
In reply to: sheila: "Re: Free Fluid in Pelvis: PLEASE HELP!!"

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