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Re: I just don't know what else to do

From: Nicole (anonymous@obgyn.net)
Mon Feb 26 22:00:15 2007


Also check out the EndoDoc's forum on Yahoo! (link below) http://health.groups.yahoo.com/group/EndoDocs/?yguid=299695264

There is also a list on the Endovictims webpage: http://www.geocities.com/endovictims/endodocs.html

You definatly need to see a specialist who is experienced in Endo and fertility issues. Also you probably need to see a pain specialist. Most doctors are uncofortable prescribing pain meds used for severe pain, (doesn't mean you shouldn't use them though...you have every right for pain relief!) See some of my posts below entitled "Long-term pain management" for other conversation on the pain issue. I've been going to my pain doc for a while and for me it is essencial. Basically here's what it's all about...Usually a doctor will first have you try an "NSAID" (Non-steroidal-anti-inflammatory drug) These include medicines like toradol, ketaprofin, and aleve, (aleve is also known as naproxin). "NSAIDS" are actually not 'pain-killers', they are 'anti-inflammatory' drugs which means they may relieve pain by reducing inflammation. If your pain does not respond to these than you may need what they call a "narcotic" pain-killers, this is stuff like Vicodin and Percocet, which both contain asprin as well as an opiate pain-killer. Others such as fentanyl, morphine, dilaudid, demerol etc. do not contain asprin. All are used to treat moderate to severe pain, although. Some people may tell you that others are "stronger" than others...but it really only depends on the dose at which it is prescribed. Please not that the "NSAID" class of drugs can reek havok on your stomach, they also need to be taken BEFORE pain comes on in order to be the most effective in reducing inflammation, consult your doctor on proper use. The side effects of Opiate pain-killers("narcotics") is constipation, so you must take stool-softeners with these. If anyone tell them you could become an addict, tell them they need to educate themselves because patients taking opiates for pain rarely become "addicted" (unfortunatly, addiction is poorly understood by most people and doctors alike. Hope that helps. I sometimes use heat for my pain, some women like ice-packs. If you can't get to a doctor at the moment and the pain is unbearable...go to the ER. I know the ER is a terrible place for women with Endo, but you may get lucky. Hope I've been helpful. hope youre out of pain soon. Nicole

At Mon, 26 Feb 2007, Kristy wrote: >
>My PCP gave up on my 4-5 years ago. My ob/gyn made me have bloodwork
>done and an ultrasound on my kidney in December...which of course came
>back normal/negative. She told me that she really wants me to get
>pregnant, but my husband and I don't want a baby yet. (We haven't even
>been married a year.) Last month I called with severe pain in my back
>about a week before my period (I've been having back pain with my period
>since my laparoscopy 4 years ago), and she said that I needed to go see
>an orthopedist to rule out any back problems. Which to means that she
>too has given up on me.
>
>I have searched the internet exhaustively and only been able to find 2
>endo specialists in the DC metro area...one seems to be some sort of
>expert witness for lawsuits and the other is at a fertility clinic. Of
>course the insurance won't cover the visits to the guy at the fertility
>clinic because it's considered infertility treatment...and we just can't
>cover the out of pocket cost right now.
>
>I have been in so much pain today, alternating ibprophen and tylenol in
>the attempt to make it barable, but it's not working and I won't start
>my period until Friday night at the earliest. I just don't know what to
>do. It hurts so bad taht I started crying multiple times today. (I'm
>sure the folks at my new job think I'm a freak.)
>
>Does anyone out there know of any good ob/gyns or endo specialists in
>the DC metro area? Do any of you have any suggestions of perscription
>pain medication I could specifically ask my PCP for? I need something to
>help me get through this pain...I just can't take it anymore!!!






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