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Re: Endo and Hysterectomy
From: Julie (anonymous@obgyn.net)
Mon Feb 26 07:40:50 2007
Wow...I think I am going to have a breakdown. I cannot believe that I
can still have endo. Why on earth did my doctor suggest such a radical
surgery then? I am in shock right now. I just wanted to say thank you
though for the note and the links. I just can't believe this
At Sun, 25 Feb 2007, D wrote:
>
>Hi Julie,
>
>I'm really sorry to tell you, but yes, as you suspected you can have
>endo return after a hysterectomy. I think your best bet is to get a
>second opinion with an endo specialist who can thoroughly remove the
>disease by excision. There's a link to the "endodocs" yahoo group at
>the bottom of this message, it's a good place to look for a doctor. The
>other group linked to is another endo support group that may also be
>helpful - there are a lot of knowledgeable women in there.
>
>At Sun, 25 Feb 2007, Julie wrote:
>>
>>I am new to the board, but have a question. I have suffered with endo
>>since I was probably 16 yrs old. I wasn't diagnosed until trying to get
>>pregnant in 1999. I had my first lap in 2000 and had stage iv endo.
>>Doctor removed and we tried again to have a baby. After a while we
>>found that our doctor wasn't having good results in IVF, so we went to
>>another doctor. He did some blood work and found that my "eggs" were
>>too old to conceive. He also said that my endo is probably back as
>>well. This was one year later. Had another lap and endo all over. The
>>doctor said he went through and got the "roots" as well and should be
>>good to go. We did IVF with donor and have twins now.
>>
>>I know the symptoms of endo, so when I felt them coming back last year,
>>I went back to the doctor (same doctor) and said I am having alot of
>>pelvic pain and pain on my lower right side and asked "is my endo back"
>>and he said that he didn't think so. I asked if we could do another lap
>>and he kind of said it probably wasn't the endo and the lap would only
>>be a "temporary fix" and suggested a hysterectomy. I met with him
>>several times that year and after what he said, I said okay to it. I
>>should have known better...in the back of my mind I still felt that it
>>was endo again...but I went ahead with the surgery. Right before I went
>>under the last thing I said to my husband was "make sure you ask him if
>>he found endo". After the surgery my husband told me "they found endo
>>again"....I was blown away, but couldn't change anything at that point.
>>All I thought was "okay...I will deal with this..at least I won't have
>>it again.
>>
>>Unfortunately after being released from the hospital, I was unable to
>>void at all. Long story short....I am now living with a "dead" bladder
>>and will have to self cath myself for the rest of my life because of
>>this surgery. I was never told of any common complications from this
>>surgery and feel stupid for just trusting this doctor...anyway..that is
>>another story.
>>
>>Okay...my main question is....can I still have endo again? After my
>>surgery and being on the internet I found people that are suffering from
>>endo after a hysterectomy. I had a radical hysterectomy as
>>well...another dumb thing I did on misinformation....anyway....can I
>>still have endo and can it come back? I will be mortified if I can. I
>>can't tell you how sick endo made me. Throwing up, passing out, pain,
>>etc. Please....can someone give me the answer?
>>
>>--
>>Julie
>>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
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