Re: Endo and Hysterectomy
From: D (anonymous@obgyn.net)
Sun Feb 25 19:24:45 2007
Hi Julie,
I'm really sorry to tell you, but yes, as you suspected you can have
endo return after a hysterectomy. I think your best bet is to get a
second opinion with an endo specialist who can thoroughly remove the
disease by excision. There's a link to the "endodocs" yahoo group at
the bottom of this message, it's a good place to look for a doctor. The
other group linked to is another endo support group that may also be
helpful - there are a lot of knowledgeable women in there.
At Sun, 25 Feb 2007, Julie wrote:
>
>I am new to the board, but have a question. I have suffered with endo
>since I was probably 16 yrs old. I wasn't diagnosed until trying to get
>pregnant in 1999. I had my first lap in 2000 and had stage iv endo.
>Doctor removed and we tried again to have a baby. After a while we
>found that our doctor wasn't having good results in IVF, so we went to
>another doctor. He did some blood work and found that my "eggs" were
>too old to conceive. He also said that my endo is probably back as
>well. This was one year later. Had another lap and endo all over. The
>doctor said he went through and got the "roots" as well and should be
>good to go. We did IVF with donor and have twins now.
>
>I know the symptoms of endo, so when I felt them coming back last year,
>I went back to the doctor (same doctor) and said I am having alot of
>pelvic pain and pain on my lower right side and asked "is my endo back"
>and he said that he didn't think so. I asked if we could do another lap
>and he kind of said it probably wasn't the endo and the lap would only
>be a "temporary fix" and suggested a hysterectomy. I met with him
>several times that year and after what he said, I said okay to it. I
>should have known better...in the back of my mind I still felt that it
>was endo again...but I went ahead with the surgery. Right before I went
>under the last thing I said to my husband was "make sure you ask him if
>he found endo". After the surgery my husband told me "they found endo
>again"....I was blown away, but couldn't change anything at that point.
>All I thought was "okay...I will deal with this..at least I won't have
>it again.
>
>Unfortunately after being released from the hospital, I was unable to
>void at all. Long story short....I am now living with a "dead" bladder
>and will have to self cath myself for the rest of my life because of
>this surgery. I was never told of any common complications from this
>surgery and feel stupid for just trusting this doctor...anyway..that is
>another story.
>
>Okay...my main question is....can I still have endo again? After my
>surgery and being on the internet I found people that are suffering from
>endo after a hysterectomy. I had a radical hysterectomy as
>well...another dumb thing I did on misinformation....anyway....can I
>still have endo and can it come back? I will be mortified if I can. I
>can't tell you how sick endo made me. Throwing up, passing out, pain,
>etc. Please....can someone give me the answer?
>
>--
>Julie
>
--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/
Try an excellent endo support group:
http://groups.yahoo.com/group/erc/
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)