ENDO Messages for February, 2007: Re: I am still not diagnosed

Re: I am still not diagnosed

From: Cathy (anonymous@obgyn.net)
Fri Feb 23 18:31:16 2007

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I'm on this site because I don't know what I have. Since I was nineteen I have had increasing severe dysmennoreah during and sometimes before my period, making me an invalid as much as one week if not more a month. Before I discovered Advil and Aleve I had to go to the ER at times the pain was so bad. I need to take as many as 3 triple doses of Aleve about 3 days during my period and now, even before to stop the excrutiating pain. I thought I had PMDD and now I hear that's mainly an emotional disorder. Could I have endometritritus (sp?). My doctors just act like I have PMDD and the pill will take of everything, but due to my smoking (I just quit) and my emotional swings and weight gain (I have major body-image issues) I never saw it through and antidepressants have not worked. Now I'm ready to try the pill -Nueva Ring this time, but know I'm thinking I may have something different than I thought. I also don't know whether my former gyno's idea of taking the pill so I never get my period is a good idea. I would love to hear any imput anyone may have. At Fri, 19 Mar 2004, Chris wrote: >
>Hi Tiana, I am writing to you because I have many of the same symptoms.
>It sounds like your gyn doesn't want to deal with it either. I think
>you are making the best move by going to an endometriosis specialist! I
>had my first surgery with my regular obgyn and ended up having a
>laparotomy (open incision) because my obgyn isn't as experienced as a
>doctor who does laparoscopic surgery more often. This has caused me to
>have more problems with adhesions. I had a second surgery that did
>nothing for me and, finally, I learned and I am now going to an
>endometriosis specialist. So, you are probably saving yourself a few
>needless surgeries and pain and suffering. With your family history and
>symptoms I don't know how your doctor can tell you that what you have is
>normal cramping. Especially with the rectal bleeding. I read that that
>can mean the endometriosis has gone through the full thickness of the
>bowel. I also read that they think endometriosis is hereditary and if
>you inherit it from your mother, chances are that you have it worse. I
>can't tell you how to deal with the pain, but I can tell you that I
>think your are doing the right thing by going to an endo specialist. I
>will keep you in my prayers. Chris
>
>At Fri, 19 Mar 2004, Tiana wrote:
>>
>>I am 20 years old and for the last 5 years I have been experiencing pain
>>with menstrual cycles. Each year the symptoms and pain get worse.
>>Lately I have been having heavy bleeding, irregular periods, severe
>>cramping and sharp pain (like someone is stabbing me), rectal bleeding,
>>painful bowl movements, pain with intercourse (after and during), back
>>ache, headache, and upset stomach. I have talked to my gyno about all
>>of symptoms and he had suggested trying me on birth control pills. In
>>the past 5 years I must have tried tons of different birth control
>>pills, pain killers, patches, foams, and other types of contraception
>>that really have not helped my symptoms. I found out recently that
>>endometriosis and uterine fibroids run on my mother's side of the
>>family. I have been experiencing so much pain (especially around that
>>time of the month) that I miss school/work and can't get out of bed. It
>>seems like my gyno thinks I am jumping the gun and overreacting about my
>>symptoms and has suggested that it is just regular cramping; i should
>>try another birth control pill and take a stronger pain killer. He
>>can't explain why I have the pelvic pain all the time and why that area
>>is always sensitive when it's touched. I have decided to take it upon
>>myself to see an endometriosis specialist, but I must admit I am scared.
>>I think that it is a bit more serious than my gyno suspects. I have had
>>a colposcopy done but he will not do a lap until I try 3 months of this
>>new birth control pill. He said I have no sign of cancer or
>>dysmennoreah but I am not sure if I am doing the right thing. I know
>>what I am feeling and I just want to know if I have endometriosis. As
>>women who have been diagnosed, I wanted to know if you could offer me
>>any help? How do I deal with the pain?

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