ENDO Messages for February, 2007: Re: I feel so hopeless and scared

Re: I feel so hopeless and scared

From: anonymous (anonymous@obgyn.net)
Wed Feb 21 11:32:59 2007

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In reply to: Sarah: "I feel so hopeless and scared"

At Fri, 2 Feb 2007, Sarah wrote: >
>Hello all... I was diagnosed with Endo in 2005 after I balled over in
>pain while doing my hair and had to got to the emergency room. I then
>found out I had a cyst the size of a tennis ball on me left ovary and
>needed emergency surgery. ( I still have my ovaries). After that about
>2 months later I started to feel pain everytime I walked so I of course
>went to the doctor and she being an over pain under knowledge girl told
>me it was nothing. So I changed doctors because I know I'm not crazy
>and for years before my surgery I use to tell doctors, friends and
>family that something was wrong but everyone just said it was in my
>head... Anyways sorry back to the other story I changed doctors and he
>said that I had another cyst on my right ovary and that he wants to put
>me on Lupron and he couldn't understand how my previous doctor was so
>careless. 2 Weeks after starting the Lupron I awoke a 6am in incredible
>pain...so off I go back to the hospital ( a different hospital) and was
>seen but htis incredibly nice doctor. He did some tests and said that
>everything looked as fine as it could be considering the cyst but he
>wouldn't feel comfortable sending me home. So into surgery I go again
>the first time it was a laparotomy this time it was a laprascopy in
>either case they both hurt while recovering. The first surgery wsa in
>October 2005 and the second was April 2006. Now I've finished my Lupron
>3 months ago and started getting my period again ( by the way who ever
>invented Lupron I could kiss them).Now I have incredible backaches and
>cramps that usually last about 3 days but I get so depressed and I've
>done reserch online about this disease and it scares me to death. I'm
>afraid to leave my house just incase I get terrible cramps. I can't
>walk for long periods of time cause my back is to sore. My husband as
>much as I love him I don't think he fathom what's happening to me. I
>started my period today so I'm feeling horrible and needed to just talk
>to someone who can relate.Half the time I want to be left alone so I
>hide in our bedroom...I don't sleep much at night and feel like this
>computer is my best friend. I'm not a cryer and everytime I start to
>think about things I just want to cry. However I do it when nobody can
>see me. I use to be so out going I use to party and hang out with my
>friends...now I just want to stay home. I'm 26 years old this month and
>I've completely isolated myself. I thank anybody who is reading this
>long letter but as I stated before I needed a shoulder from someone who
>can relate.
>Thank you so much for time.

Hi nicole i too suffer endomet.and have had one emergency operation and a second one this january o7 and am awaiting my third op as they have discovered a gnot that has grown into my muscular wall of the large intestine. i too have done a lot of research on this and i do think that changing the nutrition does help,because the large intestine is closely related to our immune system,and having an auto immun disease,it is of great importance to realise that eating the wrong things do even more damage. what has worked for me is to stop eating beef,dairy products,unhealthy fats,processed foods,bread,because of the gluten and other allergene ingredients. what my specialists have told me is that if they cut out the endometrium gnots i have a greater chance of getting peace back into my body. another thing that is good for reducing cramping is to reduce the stress level in life,join yoga classes or even thai chi,learn to breath correctly,and maybe meditation,all this helps a lot,and after all our bodies do have selfhealing powers too. i am a strong believer in the link of emotional imbalance and manifestations in the body. you need to look inside your heart and ask yourself what it is that is making you so stressed?try and be nonjudgemental,there is no good or bad,everyone is an individual and even though we share the same name of this imbalance,the reasons why you have got it may differ from mine. another thing that might be of interest is the herb agnus castus,best to take it in form of drops,search foe a good health store near you and do some research. i wish you the best of luck and everyone else who might have been reading my text.Britta

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