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Re: Another diagnosis, more waiting... I want a lap!
From: anonymous (anonymous@obgyn.net)
Wed Feb 14 13:59:48 2007
Seek a second opinion. A lot of obgyns shy away from doing laps because
they think you are too young to have endo, and a lot shy away because
they don't know enough about it. Did you have any procedures done to
diagnose the ic? That may not be the right diagnosis. Please, ask your
doctor to refer you to another obgyn, or self-refer if you can with your
insurance, and get another opinion. I have know many women, myself
included, that showed nothing on the ultrasound only to later be
diagnosed via lap with stage iv endo. While you don't want a
surgery-happy doctor, you certainly don't want one who doesn't listen to
you and your symptoms.
Good luck to you!!
At Wed, 14 Feb 2007, Laura wrote:
>
>I really think that I have endo. Some of this pain is just so bad, but
>the doctors keep shying away from a lap. Recently, I also started
>having bladder issues, so they diagnosed Interstitial Cystitis and I
>started taking Elmiron ($300/month!) Then I mentioned that I've had some
>burning and iritation, and they think I have vulvar vestibulitis. Now
>I'm supposed to start using this estrogen cream. If I don't feel
>improvement from the Elmiron or the cream, then in a month they may
>start discussing the possibility of a lap. Some of my pain with
>intercourse, though, is not bladder related. And I have this specific
>pain on my right side, but since nothing showed up on an ultrasound,
>they are ignoring that.
>
>Why do I have to wait so long for a lap? Why are doctors so difficult? I
>guess I'm just venting a bit. But I'm 19, I'm still on my parents
>insurance plan. They are starting to believe that the doctors don't
>know what they are doing, and soon I feel that my parents will not
>support me anymore. I've seen something like 6 doctors now. All of
>this is so much to deal with. Not just the pain, but making
>appointments, getting test results back, and trying to still remain a
>fulltime student and hold a job. I guess I just have to wait it out,
>but I am sick of all of this waiting. And I am tired of all the
>medications I've tried. (BCP, Elmiron, Naproxen, prescription pain
>meds, Detrol LA, creams, muscle relaxers, antibiotics, etc...)
>
>I wish the system worked better. While I'm currently studying music at
>the university, I'm starting to believe that I will spend part of my
>life advocating women's health issues so that others do not have to
>experience what I have been thru.
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