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Re: How could he have got it so wrong?From: anonymous (anonymous@obgyn.net)Wed Feb 14 07:41:48 2007
At Tue, 13 Feb 2007, Kristy wrote: > >My friend knew that her dr (which was Dr. Albee) found endo even though >the biopsy of the lesion didn't show endo. But it was indeed endo. She >didn't fit the stats b/c of the result of the biopsy and yes, she knew >that she still had issues with endo. Dr. Albee even said that it was >endo although the biopsy didn't say it was. Path reports can miss as >well. My friend will always have issues with her endo. > >This is why I don't agree with you that an endo specialist necessarily >knows more about endo than a regular local OB/GYN. There are times >where an actual regular OB/GYN can know more than a top specialist. I've >met several ladies that it has happened to where they went to the top >specialist in the hopes of getting relief and they had endo missed by >the top specialist and when they went to a regular OB/GYN in their area >the endo was found. If Dr. Albee knew it was endo even though pathology came back that it wasn't, doesn't that mean that he knows a lot about endo? I know of a lot of obgyns who would have just taken the pathology reports and that would have been that.
>Condescending has several meanings and yes, I'm very confident about The definition I am referring to is: displaying a patronizingly superior attitude (adj). But I think you already knew that. I have also done a lot of research, have been a part of this forum for almost ten years, and have read almost every post that you have written. I also have stage IV endo, fibromyalgia, PCOS, fibromyalgia, infertility, chronic yeast infections, vulvodynia, and fibrocystic breasts (just to name a few, literally). I have dozens of books, have been to hundreds of doctors, and devote most of my time to educating others in my community about endo. But, I still don't know everything-and I don't act as though I do. Endo is an enigma. And most (not all, but most) obgyns don't know much about it. What they do know is usually outdated or incorrect. I went for six years thinking that the unbelievable pain I was experiencing was all in my head-because I trusted my obgyn when he told me so. It wasn't until all my activites had stopped from the pain, I dropped out of college, and I couldn't even move my leg that he finally mentioned endo. Saying that he was "100% positive" that I didn't have it. After an entire year worth of painful tests, he finally did a lap-and found endo EVERYWHERE. He burned off the top layer of everything except what was on my organs, closed me up, and said there was nothing else that could be done. Not nothing else he could do, but nothing else that could be done. Like a fool, I still believed him. I took high level bcp continuously for years afterwards, until I heard of Dr. Albee. I begged, pleaded, borrowed, and stole to get the money to see him. When I sent him my records, he felt positive that he could help me. And he did. He had to remove portions of my bladder, my appendix, my gallbladder, unglue my entire bowel from my back, remove lesions from my ligaments, and several deep adhesions, but he was able to do it. Are his stats 100% success 100% of the time? No, and he'll tell you that too. Are his stats a lot better than most obgyns? Absolutely. But I digress, my point is that no matter how many experiences that you have had, you still do not know everything. Even the top endo specialist that have devoted their entire careers to nothing but endo don't know everything. And I think that you should rephrase the way you say things to reflect that.
>If I were to say, "this is what happened to me" you would have still That is not true. The way you phrase things is as if your way is the ONLY way, and anyone doing different is a liar or uneducated. And it is not about winning. It is about getting women the best, most accurate information available without telling them that there is only ONE way.
>Also, yes, I have been thru a lot but not all of it b/c of my endo. Believe me, I understand this more than most. My point was that even though you have done a lot of research, you still don't know everything. And it is not fair to act as though you do.
>I gave you an experience although it wasn't mine to back up part of what There is no way to answer this question. You would have to ask the doctor that did your first surgery.
>Now I do agree that specialists know a lot about endo compared to many Again, there is no way to answer this question. There are exceptions to every rule, but the rule is still there because majority rules. Perhaps the person she went to was not an actual specialist. This happens a lot.
>Like me you all are confident about what you know and neither of you The confidence is not the problem. It is the way you write that causes the problems for me. You come off very arrogant and all knowing. I mean, you even told someone how to post their replies for goodness sake. It is one thing to ask someone to post differently, but you out and out told them how to post.
>The error rate for ultrasound and MRI when it comes to adeno is very I think that this is just you getting your feelings hurt. It doesn't bother me that you don't think that the specialists are "godlike." I don't either. And neither do they. Dr. Albee straight out told me that he was only human and could only do so much. Again, my problem lies in how you write your posts. Just because you got a great obgyn doesn't mean that that is the norm. Statistically speaking, you are in the minority. However, I know that you are still experiencing problems with your endo, so maybe she isn't that great to begin with? I don't know.
>Thank you for such a wonderful discussion. You are welcome. :)
>--
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