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New member- worse after Lap & LupronFrom: anonymous (anonymous@obgyn.net)Fri Feb 9 17:21:20 2007
Greetings all! Thank you so much in advance for any help or just making me feel not so alone. I have probably dealt with Endo for 15 years. I have fought Lyme Disease & Thyroid Disease for 9 years and it overshadowed the Endo for a long time. As it got better though, the Endo really came to surface. I was in and out of the ER 5 times Sept-Oct. Admitted for 5 days in Oct and had every test possible run by Cardiologist, Gastro, Surgeon. Gynocolgist visited me there and promised it wasn't Gynocological and did nothing. Went home, got even worse. Pain now at a 10, finally convinced Dr I needed a Laproscopy. Had it Nov 14. I was covered in Endo lesions. I think I was one step down from the most severe but she said I was just really, really bad. She did not remove any lesions, but did take 2 large cysts off a Fallopian tube. Started me on Lupron Nov 15. I bled for a solid month and was in incredible pain. Was told if I was still hurting it would probably take several months for pain to go away. Lived on Percocet. By Christmas, pain was gone, life was great. Mid-January pain slowly started back up. Last week pain was back to a 7. Went back to Gyno last week and she said I may need Lupron injections for an entire year. This week the pain is not so intense, maybe a 4, but the fatigue is just incredible. My hands are swelling, eyelids are swelling. I'm having leg pain and back pain. I absoluetly, positively cannot sleep. Went to my family Dr who started me on a sleeping pill. Been on add-back therapy a month so it isn't the hot flashes. I'm just so suspicious that something else may be wrong with me, but after reading some of the posts here, I am wondering if maybe it is actually the Endo still making me so sick. Had just expected to have a grand resolution by now and to be more and more worthless each day is such a let down. I have had autoimmune diseases for so much of my life- it's just so frustrating. So, I guess I am just curious if others in my situation have gotten so much better, then gotten so much worse after being on Lupron for several months. Can Endo at this stage still be causing this extreme fatigue and general flu-like feeling? If I have to just be patient I will, it's just frustrating to not know and to be getting sicker by the day. I have to adsmit the Lupron scares me, but I don't know what else to do. I can't go back to #10 pain.
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