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Re: Always Confused!!
From: Julie (anonymous@obgyn.net)
Wed Feb 7 17:03:38 2007
I don't think that you can solicit clients on this board. :(
At Wed, 7 Feb 2007, Deena wrote:
>
>Dear Julie,
>
>I was talking with Dr. Mosbrucker about the endometriosis bulletin
>board. Anyways, long story short, Dr. Mosbrucker beleives you have
>bowel endo, and would like to do a record review for you with no charge.
>Please send me an email: deena@endometriosissurgeon.com . I'll go over
>what we need.
>
>At Wed, 7 Feb 2007, anonymous@obgyn.net wrote:
>>
>>:) Sorry, Erica. I have a good friend named Emily and she was on my
>>brain when I last posted.
>>
>>I didn't mean to re-name you.
>>
>>Julie
>>
>>At Tue, 6 Feb 2007, Erica wrote:
>>>
>>>Julie,
>>>
>>>The symptoms you describe sound very much like endo. In your previous
>>>post you said that you were diagnosed with microscopic endo but that
>>>after your surgery, the endo was completely gone. I'm not sure the endo
>>>is ever completely gone-although the symptoms may be. I know your
>>>doctor most likely removed all of the adhesions. However microscopic
>>>endometrial implants are so small they often are unable to be seen and
>>>from what I have read can cause the most pain. I agree with others who
>>>have responded to you stating that the doctors do not always look in all
>>>the possible places because some are more difficult to get to but may be
>>>contributing the most to your symptoms. I personally have had alot of
>>>endo in the "cul-de-sac" or douglas' pouch region as well as near my
>>>bowels. I too have the left sided pain. Many of those with endo also
>>>have bowel related problems and many also have Irritable Bowel
>>>Syndrome-which contributes to endo pain. I personally have been told
>>>that I have this and was put on Zelnorm on a trial run to see if I
>>>responded positively to it. I did and now I modify my diet which helps
>>>some with symptoms but I too have to take pain pills to control the
>>>pain. And if you are having to do this something is definitely wrong. I
>>>would not advise you to go the Lupron route any more but that is due to
>>>the side effects I recently have experienced (see my previous posts if
>>>interested). I agree with you that surgery every few years is risky
>>>given that it can contribute to scar tissue which may bind organs and
>>>contribute to more "pulling" and pain. I would suggest diet changes-
>>>try researching this (Mary Lou Ballweg's Complete Guide to Endometriosis
>>>is a great book for this). Have you tried different brands of BCP to
>>>see if maybe another would be more effective?
>>>
>>>At Tue, 6 Feb 2007, anonymous@obgyn.net wrote:
>>>>
>>>>Hi, Erica, thanks for responding. I've had pain with periods from the
>>>>time I started at 12. Missing school and work. Throwing up, diarrhea,
>>>>passing out, going into shock, naseau, and vomiting. EVERY period I've
>>>>ever had, actually. I used to save any pain pills I got from surgeries
>>>>(having wisdom teeth pulled) because my period pain was worse than any
>>>>surgery I ever had. I have had three or more cysts burst on my ovaries,
>>>>while on birth control, which is supposed to prevent cysts from
>>>>forming...go figure. By the time I was 18 or 19 the pain was worse in
>>>>my left side, and it occurred every day regardless of what time of month
>>>>it was. I was like that for several months before they performed the
>>>>first lap. Every other lap I've had was due to the pain becoming severe
>>>>on a daily basis. Hot flashes, too. Forgot those.
>>>>
>>>>Julie
>>>>
>>>>At Mon, 5 Feb 2007, Erica wrote:
>>>>>
>>>>>Regarding whether you have endo or not, I'm interested in what sent you
>>>>>do the doctor in the first place prior to your diagnosis. What was your
>>>>>pain like? Many women on this site can testify to having a history of
>>>>>terrible periods many to the point that they would have to take days off
>>>>>from work or school because the pain was that bad. I definitely could
>>>>>identify with this. Many women also often have pain with sex at some
>>>>>point. Have you had these problems?
>>>>>
>>>>>At Mon, 5 Feb 2007, Julie wrote:
>>>>>>
>>>>>>Hey, Ladies,
>>>>>>
>>>>>>I've been a member of the forum for a few years now, though quietly. I
>>>>>>had a few questions for you all in the hopes that I haven't lost my
>>>>>>mind...
>>>>>>
>>>>>>1. I was diagnosed with microscopic endometriosis in 2000. The surgery
>>>>>>report said that there was a small spot on my left ovary (this is where
>>>>>>the majority of my pain is) was fulgerated (bad idea). That doc wanted
>>>>>>me to take Depo Lupron. I was 22 and refused.
>>>>>>
>>>>>>2. I had two more laps after the initial diagnosis done by two
>>>>>>different OB/GYNs. Neither found any endometriosis, but the most recent
>>>>>>lap showed adhesions on my left ovary (securing it twisted to the
>>>>>>abdominal wall) and on my appendix (securing it to my abdominal wall),
>>>>>>as well as around the uterus, tipping it more than it already is. My
>>>>>>OB/GNY took care of the adhesions, and stated that he did not find
>>>>>>endometriosis. Prior to this last surgery, I finally agreed to go on
>>>>>>Lupron. Unlike many women here, it helped me tremendously. I had some
>>>>>>pulling pain, but the endo pain was completely gone!
>>>>>>
>>>>>>3. Do I have endo or do I not??? I've been on Seasonale for the past
>>>>>>year or so, and it worked pretty well, as supposed to, for the first 6-9
>>>>>>months, but now I'm bleeding, spotting, cramping, diarrhea and nausea
>>>>>>from cramping and I have two full weeks left of the active pills. It
>>>>>>seems to continue this way for me. When I start BC, it seems to work
>>>>>>okay, then the effects eventually fade away until I'm left with the pain
>>>>>>I tend to always have. It's been about three years since my last lap,
>>>>>>but I think it's pretty ridiculous to have to go into surgery every 2 or
>>>>>>3 years for the rest of my life!!! Any ideas??
>>>>>>
>>>>>>Thank you in advance for any help you can provide.
>>>>>>
>>>>>>--
>>>>>>Julie
>>>>>>
>--
>Thanks,
>Deena
>deena@endometriosissurgeon.com
>http://www.endometriosissurgeon.com
>541-382-8622
>
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