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Re: Sciatia Endometriosis
From: anonymous@obgyn.net
Wed Feb 7 08:49:34 2007
Hello. I may have some experience with that. I have pain in my left
hip, butt area, sometimes it's a dull ache, othertimes it feels like a
throbbing headache. I went to my regular Dr. about it and he said it
was periformis syndrome and sent me to a physical therapist-one who
happens to be the best in the city. He is actually the reason I decided
to have my first lap to find out if I had endo or not b/c when I saw him
he told me he has a couple patients with the same problems and after
having a lap found it was due to endo. I swear that man knew exactly
where to press to make the pain so intense. So, after surgery, it
didn't help. All of the dr.'s I have been to think I'm crazy to think
that the two may be related. I have been to my regular dr., the
physical therapist, an orthopedic surgeon-I've had an MRI, x-rays and
even a steroid shot under CT scan in my SI joint-nothing came out of any
of these things. It's really annoying, even if there is no pain, I can
not bend back for more than an inch or two, otherwise it's like I get
this pulling in my hip that gets more intense the farther back I go.
I've given up now. I'm sure sometime in the near future I'll have to
have surgery again and when I go I will be mentioning that and telling
them they need to look in that area to make sure there is no endo there.
I had surgery a year and a half ago and I have a nodule in my cul de
sac-I know I had it before my surgery but not sure if it came back or
was never taken care in the first place. Good luck, I hope you are able
to find the answers!
At Tue, 6 Feb 2007, D wrote:
>
>You may have already seen my post in the "Leg Pain" thread from earlier
>this week, but here it is again just in case:
>
>http://forums.obgyn.net/endo/ENDO.0702/0219.html
>
>Leg and back pain are often caused by endo behind the peritoneum (inside
>which are the stomach, liver, small intestines, uterus, ovaries, etc.).
>Most doctors look at the organs inside the peritoneum - not behind it,
>where endo can grow on nerves, ligaments, ureters, etc.
>
>My personal experience has been that most doctors I've seen will
>acknowledge that in theory endo can grow just about anywhere in the body
>- but in practice they tend to deny a patient has endo in an unusual
>place. I've had many doctors try to tell me my problem was IBS, even
>though I told them repeatedly I was neither constipated nor did I have
>diarrhea (GI tests later confirmed it wasn't GI-related). When I
>brought up the possibility of endo on my colon/intestines these doctors
>brushed it aside as too unlikely, too rare to be my problem (I'm still
>waiting for surgery to find out).
>
>Not all doctors think like that, but you have to talk to them and decide
>how well you think they understand endo. I tried to go through the HMO
>doctors, but couldn't find one in network that really specialized in
>treating endo. There was a "pelvic pain specialist", but that isn't the
>same! I went out of pocket to an endo specialist for a consult and
>decided I'm going to do whatever is necessary to have surgery with him.
>
>Good luck finding your specialist! Have you tried the "endodocs" yahoo
>group? There's a link to it at the bottom of this message - it's
>dedicated to helping women find endo specialists.
>
>Hope this helps!
>
>At Tue, 6 Feb 2007, twila wrote:
>>
>>After reading up on a lot of info posted by people on this forum, (thank
>>you!!) I have stumbled across another type of Endo that I had never
>>heard of. I'm surprised that all these years of living with excessive
>>leg pain none of the gyno's ever mentioned "Sciatia Endo" before . .
>>.and I'm wondering if anyone here has went thru this particular type of
>>Endo or could shed some light on it for me. I would really appreciate
>>it. I'm trying to find a specialist to go to here in Canada and in the
>>meantime have found this forum so helpful. I really appreciate all of
>>you and the experiences you have shared on this forum. The Gyno's had
>>never even mentioned that Endo can be found in other areas of the body,
>>so this is all new news to me, even though I've been living with Endo
>>for several years.
>>
>>Thanks,
>>
>>--
>>twila
>>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
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