|
Re: Afraid......
From: KIM (anonymous@obgyn.net)
Thu Feb 1 12:14:11 2007
This is a first for me. I had lap surgery on 1/11 and was diagnosed
with Stage IV endo. The surgery itself is not that bad, recovery time
is only a few days. Unfortunately my symptoms have not gone away
because of how much is actually in there and they weren't able to remove
it via lap. My next surgery with now have to be a full surgery to
remove the endo that's left and possible a full hysterectomy. I am 38
yrs old with 2 beautiful daughters. I realize now how lucky I am to
have them as doctors think I've had endo since being a teenager. I am
testament that you can have endo and still conceive. Good luck with the
surgery. The only thing that I would've done different is give them
permission to do the full surgery before I went in but unfortunately I
hadn't even heard of endometriosis prior to the lap. They actually
thought I just had a large mass on my fallopian tube prior to 1/11. Now
I know I haven't just been going crazy all these years. Good luck with
the surgery. Hopefully it will help with your pain.
At Wed, 31 Jan 2007, D wrote:
>
>Hi Melissa,
>
>I wanted to second har's suggestions - make sure your doctor is an endo
>specialist and that he'll be able to thoroughly excise your endo.
>There's a link to the "endodocs" yahoo group at the bottom of this
>message, it's a good place to ask about endo doctors. And learn as much
>about endo as you can - you will probably have to make some decisions
>about treatments that can have major side effects. The erc support
>group linked to below is another very good source of information and
>support you might want to try - there's a good patient's guide to having
>a lap in the group's files.
>
>I hope you will talk to your doctor about getting some better pain
>management while you are waiting for surgery. You should NOT have to
>suffer like that! They should give you your post-op pain meds before the
>surgery, too, so you'll have them on hand when you get home.
>
>I'm sorry about your miscarriage - I don't think there is any way to
>know if endo caused it, although endo can cause problems with fertility.
>Surgical excision gives the best chances for conception, so I think you
>are on the right track.
>
>Good luck!
>
>At Wed, 31 Jan 2007, har wrote:
>>
>>Hello Melissa,
>>
>>You should search this website for laparoscopy and you will find a lot
>>of useful info. Also do a search online search as well.
>>
>>I hope you know what kind of surgery you are having. I also hope you
>>have asked your doctor about his/ her exprience with endo, what are the
>>average recurrence times in his/ her patients what method they will use
>>to remove it endo if they find it, whether they are comfortable removing
>>endo from anywhere they do find it, what kind of treatment you should
>>expect after the surgery etc. etc.
>>
>>Please understand that there is no cure to endo. The best you can do
>>for yourself is to be aware of your options. Choose an experienced endo
>>specialist and try to have excision surgery with him/ her or at least
>>get a case review if nothing else.
>>
>>Just be aware of your options. A bad surgery can cause many more
>>problems than fix any.
>>
>>Good luck.
>>
>>At Tue, 30 Jan 2007, lisa wrote:
>>>
>>>At Tue, 30 Jan 2007, Melissa wrote:
>>>>
>>>>Hi,
>>>>I'm new to this site. About 5-6 months ago I started noticing a lot of
>>>>cramping and very heavy periods, then in Nov 06 after intercourse I had
>>>>very sharp pain that caused me to barly move for a week. I saw my
>>>>regular obgyn who thought it was systs but after doing a sonogram didn't
>>>>find anything abnormal. She told me that there could not possibly be
>>>>anything else wrong with me that could cause so much pain! I got a
>>>>second opinion and and my new doc told me that I have all of the
>>>>symptoms of endo. The pain is everyday now, sometimes just a little and
>>>>sometimes so extreme that I have to curl up in a ball. I have
>>>>Laparoscopy surgery scheduled for 2/9 and I am terrified. I have never
>>>>had to have surgery. I know I have to do this to get a definite
>>>>diagnosis, and not to mention I do not have kids and I do want them
>>>>someday. I am 26 and I had a miscarriage 1 year ago, and I am afraid
>>>>that this had something to do with it.
>>>>
>>>>Anyone who could maybe share their experiences with me about the surgery
>>>>would be helpful. I am very afraid.
>>>>
>>>>Thanks,
>>>>Melissa
>>>
>>>Dont think you could of pervented the miscariage! it just happens
>>>sometimes it sucks tramendasly but you didnt do any thing wrong! Surgery
>>>for the first time is scary as heck! make sure you ask any question big
>>>or small even if you think it is stupid at the pre opp apiontment. I
>>>didnt ask any questions and was calling my dr like crazy afterwards.
>>>Take it wasy and get help for the first week so you can rest and
>>>recover. Good Luck and gld you got to find a dr who would listen to
>>>you!
>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
--
Kim
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)