ENDO Messages for January, 2007: Re: how young can you get endo?

Re: how young can you get endo? - to Ashley

From: D (anonymous@obgyn.net)
Wed Jan 31 19:31:27 2007

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Hi Ashley,

Thanks for sharing your story. I also had a lap last year and the doctor didn't find any endo, but she didn't diagnose anything else either. Instead she sent me for a GI workup and MRIs, but The GI doc ruled out any gastrointestinal causes and the MRIs were negative. My pain and symptoms have only gotten worse the last 7 months, so the doctors are back to suspecting endo again and I'm heading for another lap, with an endo specialist this time.

Endo is missed as much as 30% of the time by doctors that don't understand its many different manifestations, or don't search thoroughly. Even many women who are diagnosed still have endo that wasn't recognized at surgery and so they continue to suffer. It's important to remember that false negatives can cause big problems - not only will the pain obviously not get better, but without a diagnosis doctors may be reluctant to prescribe what is needed to manage it properly. It's also difficult to get insurance to pay for another surgery or other treatments when a doctor wrongly claims that you don't have endo - these are reasons I wish I had gone to an endo specialist right from the start.

I'm glad you found a doctor who saw the real problem and you are getting help!

At Tue, 30 Jan 2007, Ashley wrote: >
>At Tue, 30 Jan 2007, anonymous wrote:
>>
>>Hi, i'm just wondering at what age you can get endo....
>>I just turned 15 and was wondering if that could be the reason I am
>>having so much trouble. I dunno, I have always had really bad cramps
>>but since we took a vacation to south america they got really bad, I
>>just lately went to the dr. and am having tests done but... i just dont
>>have time for this! I just know this isnt normal, i get really bad pain
>>every other day,so much so that i have missed school, but I cant
>>anymore.
>>& i feel like im just making a big deal out of nothing!?
>
>--
>Hi
>My name is Ashley, I am 19 andi had stage 3 endo removed nearly a year ago, things still
>aren't much better though and i am still seeking help as now my specialist
> thinks the endo may be inside my bowel. I had a laparoscopy when i was 16 and was diagnosed
>with PID but when my pain got worse and worse i went back to seek a second opinion.
> When i had my second lap(18yrs) was when they discovered the stage 3 endo and my specialist tells me
>hes 99% sure i was misdiagnosed the first time and if he had gotten it sooner it would not have been
>so servere. Im not a doctor so i cant tell you what you should do but i would not wish what
> i have been through on my worst enemy and the journey isnt over yet. If it had been found sooner it would
>have saved me a lot of emotional and physical pain not to mention days off work, emotional and finacial stress
> on me my partner and my family. Hope this helps.
>

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

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In reply to: Ashley: "Re: how young can you get endo?"
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