Re: New Problem; ANYONE Experienced this before???
From: amanda (anonymous@obgyn.net)
Tue Jan 30 20:48:42 2007
Hi Ashley,
I too have stage II endo. I share many of your same symptoms. I have
been going through pure hell for the past 4yrs. Usually when you have
endo you also have something else combined with it. I was recently
diagnosed with PCOS, Polycystic Ovarian Syndrome. They are cyst that
grow on your ovaaries and burst from time to time which of course causes
pain, along with weight gain, hair loss, skin tags around your armpitts,
darkening of the skin, etc...
In my experience, Dr's are complete idiots and do nothing but make you
feel even more crazy or your just a pill popper when really all you want
is relief from the pain.
I am on OXY's too and continually take birth control pills so I don't
have a period because I get violently ill when I do have one!!
My new Gynecologist tells me the only cure for ENDO is getting pregnant.
Untill your reday to get pregnant it's pain pills, advil, and birth
control pilss.
I have been on Danazol and Depo Prevera and that did nothing more than
cause weight gain. I was 24 and went trough menopause. I'm actually
lucky to have a great boyfriend who is somewhat understanding (he is a
man)but still doesn't quite get it. I don't think anyone does really
unless you experience it.
I would get to the Dr. if I were you and get complete blood work done
on all your hormone levels. PCOS causes more male
hormones(testosterone). If your hormaones are outta whack, you'll be
feeling it. Trust Me!!
Good Luck!!
--
Amanda
At Tue, 30 Jan 2007, Ashley wrote:
>
>At Fri, 26 Jan 2007, Pam wrote:
>>
>>I have stage II Endo. I had a lap on Nov. 14. I have been in pain
>>every since and way before I even had the surgery. Anyway, I woke up
>>Tuesday morning to get ready for class, when I stood up it felt like my
>>insides were going to fall out. I also cannot sit without feeling the
>>same way. I was also in extreme pain. (a lot more pain than normal) I
>>have to be laying down for it not to feel like everything is falling but
>>the pain is still there.
>>
>>To make a long story short; I went to the ER and all they would do was
>>blood work and took a sample of my urine. I was told that everything
>>came back fine and they sent me home. They did get me two
>>prescribtions: Oxyocodone/APAP and Napoxen. The Oxyocodone eases the
>>pain a little bit. The ER Dr. told me that it was possible that my
>>bladder or uterus had dropped. (but he didn't feel the need to check to
>>see) He told me to see my GYN.
>>
>>I went on Thursday to see my GYN. He said that my bladder and uterus
>>were in the correct place and that everything felt and looked fine. (He
>>did a physical exam, no test or anything) He said that he couldn't
>>explain why I had the feeling that everything was going to fall out.
>>
>>It is Friday afternoon and I am still having the same problems. I was
>>wondering if anyone else has experienced this before and if so did you
>>find out what was causing it or was you able to get help. This is
>>something new for me; like I said it just started on Tuesday. All my
>>GYN kept saying was that nothing had dropped and everything was in the
>>correct place, he never even tried to figured out why I still felt like
>>that.
>>
>>Any advice would be helpful. Thanks a lot.
>>
>>Wishing for Pain Free Days...Pam
>
>--
>Hi pam,
>My name is Ashley, i had stage 3 endo removed nearly a year ago, things still aren't much better though and i am still seeking help as now my specialist thinks the endo may be inside my bowel. Anyway about your problem yes i have had that feeling many times generally leading up to my period or during it. It is the most unusual uncomfortable feeling but i never found any answer to relieve the symptoms. I told a few people what i had experienced but most of them kind of laughed and didn't take me seriously. I know this wont help you but i just thought i would let you know your not alone and it is real. Any other questions feel free to email me.
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)