Re: What could this be?
From: Barbara (anonymous@obgyn.net)
Tue Jan 30 18:44:50 2007
Elisa,
Thank you so much for your words of encouragement and hope, I really
appreciate it! I will let you know how it goes, and I won't worry too
much.
Thanks again,
Barbara
At Tue, 30 Jan 2007, Elisa wrote:
>
>Hi Barbara~
>
>I am so sorry this is flaring up on you a bit again. I hope I can help
>you hear since I am a sufferer in those areas as well. I ultimatley had
>to have my lower right ureter cut out and redirected and implanted into
>the top part of my bladder called a Bioari Flap.
>
>I used a team of Dr.'s in Atlanta who where wonderful and I believe that
>might have even trained some of the CEC Dr.'s overtime. They dissected
>that right ureter, culd-e-sac regions, right tube and ovary gone and
>bowel too. They did it the least minimally invasive way which was via
>laparoscope. It produced the same symptoms within a few months like
>your having. I was told at the time it was all the healing going on
>from all the work that was done. I have to believe that for you right
>now as well because November wasn't that far off. I sure hope so. I
>truly do.
>
>For me within 2 years I could tell it was adhered again and I had it
>looked at by another specialist in Memphis but this time done via
>laparotomy. We used 6 months prior to any surgery to use Synarel to
>shut things back down. He did a dissection and excision and really got
>into those other hidden areas that the scope didn't get. My ureter was
>severely adhered again so I had to get back home to my Urologist here
>who is a chief of urology at a University Hospital who deals with cancer
>patients and together the Dr. in Memphis and he came up with a plan to
>redirect that ureter. It couldn't hold anymore work on it. It was
>going right back to the same place it was adhering and that was after
>using Intercede to help protect against adhering.
>
>I would say if you can try to give your body at least until the fall to
>see how it does again. I know I started to feel good that first time
>after 6 months. I didn't feel the problems again until that 2nd year
>hit. I hope these words are comforting to you. They have to do so much
>that sometimes it can feel like a delay like phantom pains (which I know
>it's not) but some how out of no where it creeps right back and can
>scare us when it's our bodies way of trying to balance out from all the
>trauma of surgery.
>
>Please keep me posted and I am always happy to email you and help you
>anyway I can. OK? Hang in there!
>
>Thinking of you always...
>
>--
>Elisa
>
>At Tue, 30 Jan 2007, Barbara wrote:
>>
>>Hello ladies, I have a question that I hope somebody can help me to
>>answer. I had laproscopic excision sugery mid-November at the CEC. I
>>am feeling much better but I have still been having some pain and for
>>the last week I've noticed that it is getting more frequent and somewhat
>>stronger. The pain is located in my lower left abdomen, really at very
>>nearly the same place (at least one of the spots) that I used to have
>>pain prior to my surgery. My left ovary and tube were removed during my
>>surgery, so I am guessing that the pain has something to do with my
>>ureter or abdominal wall or even a ligament...I had to have lots of work
>>done by Dr Sinervo to get my ureter freed from the heavy scarring and to
>>get out that ovary, tube, and endometriomas on that side. I was also
>>told after my surgery that a cystoscopy showed that I have interstitial
>>cystitis (IC) too. I am not too clear about which of my old pains were
>>due to the IC and which were due to the endo since my bladder & ureters
>>were both affected by the endo. Can anyone suggest whether this is a
>>topic I should be addressing to my local ob/gyn or to my new urologist?
>>I'd really appreciate any insights!
>>
>>Thanks everyone, and best wishes for pain free days!
>>Barbara
>>
>>--
>>Barbara Clowser
>>
--
Barbara Clowser
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