ENDO Messages for January, 2007: Re: What could this be?

Re: What could this be?

From: Elisa (anonymous@obgyn.net)
Tue Jan 30 18:32:45 2007

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Hi Barbara~

I am so sorry this is flaring up on you a bit again. I hope I can help you hear since I am a sufferer in those areas as well. I ultimatley had to have my lower right ureter cut out and redirected and implanted into the top part of my bladder called a Bioari Flap.

I used a team of Dr.'s in Atlanta who where wonderful and I believe that might have even trained some of the CEC Dr.'s overtime. They dissected that right ureter, culd-e-sac regions, right tube and ovary gone and bowel too. They did it the least minimally invasive way which was via laparoscope. It produced the same symptoms within a few months like your having. I was told at the time it was all the healing going on from all the work that was done. I have to believe that for you right now as well because November wasn't that far off. I sure hope so. I truly do.

For me within 2 years I could tell it was adhered again and I had it looked at by another specialist in Memphis but this time done via laparotomy. We used 6 months prior to any surgery to use Synarel to shut things back down. He did a dissection and excision and really got into those other hidden areas that the scope didn't get. My ureter was severely adhered again so I had to get back home to my Urologist here who is a chief of urology at a University Hospital who deals with cancer patients and together the Dr. in Memphis and he came up with a plan to redirect that ureter. It couldn't hold anymore work on it. It was going right back to the same place it was adhering and that was after using Intercede to help protect against adhering.

I would say if you can try to give your body at least until the fall to see how it does again. I know I started to feel good that first time after 6 months. I didn't feel the problems again until that 2nd year hit. I hope these words are comforting to you. They have to do so much that sometimes it can feel like a delay like phantom pains (which I know it's not) but some how out of no where it creeps right back and can scare us when it's our bodies way of trying to balance out from all the trauma of surgery.

Please keep me posted and I am always happy to email you and help you anyway I can. OK? Hang in there!

Thinking of you always...

-- Elisa

At Tue, 30 Jan 2007, Barbara wrote: > >Hello ladies, I have a question that I hope somebody can help me to >answer. I had laproscopic excision sugery mid-November at the CEC. I >am feeling much better but I have still been having some pain and for >the last week I've noticed that it is getting more frequent and somewhat >stronger. The pain is located in my lower left abdomen, really at very >nearly the same place (at least one of the spots) that I used to have >pain prior to my surgery. My left ovary and tube were removed during my >surgery, so I am guessing that the pain has something to do with my >ureter or abdominal wall or even a ligament...I had to have lots of work >done by Dr Sinervo to get my ureter freed from the heavy scarring and to >get out that ovary, tube, and endometriomas on that side. I was also >told after my surgery that a cystoscopy showed that I have interstitial >cystitis (IC) too. I am not too clear about which of my old pains were >due to the IC and which were due to the endo since my bladder & ureters >were both affected by the endo. Can anyone suggest whether this is a >topic I should be addressing to my local ob/gyn or to my new urologist? >I'd really appreciate any insights! > >Thanks everyone, and best wishes for pain free days! >Barbara > >-- >Barbara Clowser >

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