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Re: Endo returning while on Lupron?From: Heather (anonymous@obgyn.net)Mon Jan 29 15:49:19 2007
I was on Lupron for 6 months and was off for only 3 months and had to have emergency surgery. The endo had all returned! The pain was much better when on the Lupron but the growth did not stop! It does not work for everyone was what I was told! I wish that it would have helped stop the endo, but it did not, but on the other side I was pain free for a while. At Sun, 28 Jan 2007, D wrote: > >Yes, this can happen because endo makes its own estrogen - it doesn't >need the estrogen from your ovaries to grow. Some women don't get any >relief at all, you are fortunate that it worked for a while. > >The best thing is to find a doctor who can excise the disease, you'll >need to do something else when you stop the Lupron anyway. > >At Sat, 27 Jan 2007, Amy wrote: >> >>Hi, >> >>I had my first lap this past August, but after the surgery my pain >>wasn't any better, and so I started taking Lupron in September. Lupron >>made a huge difference, and my pain was substantially reduced. In the >>months before I started Lupron I had chronic pain in one specific place >>in my lower left abdoment, and the pain would get a lot worse during sex >>or when I had bowel movements. Since starting Lupron, until last week, >>those things have not triggered any additional pain, and overall my pain >>has been much better. But in the last week, my pain seems to have >>returned with a vengeance, in the exact same spot, and it is again being >>made worse by bowel movements (at least now I'm single, so I don't have >>to worry about painful sex ;). >> >>This seems like it's probably the endo returning, but I don't understand >>how - I've heard that endo regrows when you stop Lupron, but how could >>it recur while I'm still on it? Has anyone experienced this before? I'm >>seeing my doctor on Wednesday, and I want to be informed, but I'm not >>finding anything on the internet about this. >> >>Any insight would be appreciated! >> >>Thanks, >>Amy > >-- >Find an endo specialist in the ERC's EndoDocs group: >http://groups.yahoo.com/group/EndoDocs/ > >Try an excellent endo support group: >http://groups.yahoo.com/group/erc/ >
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