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Re: Endo returning while on Lupron?From: anonymous@obgyn.netSun Jan 28 23:49:57 2007
At Sun, 28 Jan 2007, D wrote: > >Yes, this can happen because endo makes its own estrogen - it doesn't >need the estrogen from your ovaries to grow. Some women don't get any >relief at all, you are fortunate that it worked for a while. > >The best thing is to find a doctor who can excise the disease, you'll >need to do something else when you stop the Lupron anyway. > >At Sat, 27 Jan 2007, Amy wrote: >> >>Hi, >> >>I had my first lap this past August, but after the surgery my pain >>wasn't any better, and so I started taking Lupron in September. Lupron >>made a huge difference, and my pain was substantially reduced. In the >>months before I started Lupron I had chronic pain in one specific place >>in my lower left abdoment, and the pain would get a lot worse during sex >>or when I had bowel movements. Since starting Lupron, until last week, >>those things have not triggered any additional pain, and overall my pain >>has been much better. But in the last week, my pain seems to have >>returned with a vengeance, in the exact same spot, and it is again being >>made worse by bowel movements (at least now I'm single, so I don't have >>to worry about painful sex ;). >> >>This seems like it's probably the endo returning, but I don't understand >>how - I've heard that endo regrows when you stop Lupron, but how could >>it recur while I'm still on it? Has anyone experienced this before? I'm >>seeing my doctor on Wednesday, and I want to be informed, but I'm not >>finding anything on the internet about this. >> >>Any insight would be appreciated! >> >>Thanks, >>Amy > >-- >Find an endo specialist in the ERC's EndoDocs group: >http://groups.yahoo.com/group/EndoDocs/ > >Try an excellent endo support group: >http://groups.yahoo.com/group/erc/ > Hi Amy! I have been battling endo for 6-7 years now. I did Lupron and Danocrine at the same time. They are basically the same. I had pains all throughout the treatment and that was hell. It didn't help my endo at all. I have been going to Pain Management for 5 years now but it takes pain pills to help me functiom. It took me 2 1/2 yrs to get pregnant and when I finally did my endo didn't get better with pregnancy either. I just wanted to let you know I had the same problems on Lupron and Good Luck! Casey
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