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Re: Nervous about Lupron, addback therapy--Marie, Jessica, and Erica

From: anonymous@obgyn.net
Thu Jan 25 17:09:33 2007

FYI: The addback therapy is progesterone, not estrogen.

At Thu, 25 Jan 2007, anonymous@obgyn.net wrote: >
>Marie
>
>I had Lupron without addback and it was hell. I tried the addback, but
>I couldn't tolerate it. I've also heard that in some cases addback can
>reduce the pain relief gotten from Lupron (the estrogen can feed the
>endo). I'll never do Lupron again and I'd recommend strongly aganist it
>on the basis of my experience. But if you are considering, think about
>how well you tolerate BC pills. If you have trouble with them, be
>worried, b/c addback is the same stuff in much larger doses.
>
>Jessica and Erica,
>
>Have either of you been tested for auto-immune diseases or evaluated by
>a rheumatologist? I'm having a similar experience and the rheumatologist
>is testing me for Lupus and Scleroderma. If you haven't, it might be
>worth looking into...the rheumatologist swears that if I have something
>she has treatments that can help.
>
>Jenn
>
>At Thu, 25 Jan 2007, Marie wrote:
>>
>>I've heard this before too. What I'm wondering like, in one of the
>>other recent posts, is if you had the add back therapy along with the
>>Lupron to help with the side effects? I've also been told that this
>>helps a lot with the side effecets. I'm trying to figure out if women
>>have improvements with side effects and this drug with the add back.....
>>or if these terrible side effects are more with the Lupron alone.
>>I need to to make a decision about Lupron too so I'm trying to do all
>>the research I can!
>>
>>--
>>Marie
>>
>>At Thu, 25 Jan 2007, Erica wrote:
>>>
>>>I second Jessica's message. I won't go into detail because I've made
>>>other posts about my experiences with Lupron but I had two injections
>>>and am now suffering from severe joint pain (one of the side effects of
>>>Lupron). I didn't think I could be in worse pain that what the endo
>>>caused but I was wrong now I have this pain on top of the endo pain. In
>>>my case it was not worth it and I think you will find many others if you
>>>do the research. I also developed a skin reaction and taste adversion
>>>to food. What I didn't know before I chose that treatment is that some
>>>of the side effects last for months even if you decide to stop
>>>treatment. In my case the side effects didn't really kick in until my
>>>second injection. I know you have great hopes for this drug as did I
>>>but please do your research or you could be getting much more than you
>>>bargained for.
>>>
>>>At Thu, 25 Jan 2007, Jessica wrote:
>>>>
>>>>Im prob too late but I would never take Lupron agian eben if someone
>>>>were to pay me thousands of dollars. i only had two injections and
>>>>stopped takin it bak in 2004 and am still haveing side effects. I dont
>>>>have time to ellaborate il just let you kno that Lupron gave or
>>>>triggered a painfull disease in me that I will now have to live w/the
>>>>rest of my life. I suggest you go under yahoo groups and search for
>>>>Lupron Victims. Theres a group of women there who can tell you more
>>>>abobut the experiences theyve had.
>>>>
>>>>--
>>>>Jessica
>>>>
>>>>Thu, 25 Jan 2007, Olivia wrote:
>>>>>
>>>>>Did any of you do the adback progesterone therapy with the Lupron? I've
>>>>>been told this helps a lot.
>>>>>
>>>>>At Thu, 25 Jan 2007, anonymous@obgyn.net wrote:
>>>>>>
>>>>>>Hi Ilea,
>>>>>>
>>>>>>I have done the Lupron route, as I too had endo they couldn't get
>>>>>>out...stuck in those off the wall places.
>>>>>>The shot itself hurts only a little bit. The injection site might be
>>>>>>sore for a day or two. For the first couple of weeks your estrogen will
>>>>>>sky rocket (be prepared for some emotional changes). After that, it
>>>>>>drops to practically nothing. This part was easier for me than the
>>>>>>increase. The hot flashes are frustrating, but if you can handle them
>>>>>>you will be okay. Let me know if you have any questions.
>>>>>>
>>>>>>Cheers,
>>>>>>
>>>>>>Alexis.
>>>>>>
>>>>>>At Thu, 25 Jan 2007, Ilea wrote:
>>>>>>>
>>>>>>>I am having mu first injection today! I am really anxious/nervous. I
>>>>>>>haven't been sleeping well for the last couple of days. If anyone has
>>>>>>>gone this route, and could fill me in on what to maybe expect, it would
>>>>>>>be greatly appreciated!!! My doc saud this was the way to go... since I
>>>>>>>have endo everywhere,in places that she couldn't remove it from. The
>>>>>>>plan is to hopefully preserve my right ovary, since the left one is not
>>>>>>>functioning. I am scared! I am only 26 and hopefully I will be able to
>>>>>>>still have kids in the future. Thanks for letting me vent!!!! Off I
>>>>>>>go.....
>>>>>>>
>>>>>>>--
>>>>>>>Ilea
>>>>>>>=)
>>>>>>>

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