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Re: Nervous about Lupron, addback therapy--Marie, Jessica, and Erica

From: anonymous@obgyn.net
Thu Jan 25 16:08:19 2007

Marie

I had Lupron without addback and it was hell. I tried the addback, but I couldn't tolerate it. I've also heard that in some cases addback can reduce the pain relief gotten from Lupron (the estrogen can feed the endo). I'll never do Lupron again and I'd recommend strongly aganist it on the basis of my experience. But if you are considering, think about how well you tolerate BC pills. If you have trouble with them, be worried, b/c addback is the same stuff in much larger doses.

Jessica and Erica,

Have either of you been tested for auto-immune diseases or evaluated by a rheumatologist? I'm having a similar experience and the rheumatologist is testing me for Lupus and Scleroderma. If you haven't, it might be worth looking into...the rheumatologist swears that if I have something she has treatments that can help.

Jenn

At Thu, 25 Jan 2007, Marie wrote: >
>I've heard this before too. What I'm wondering like, in one of the
>other recent posts, is if you had the add back therapy along with the
>Lupron to help with the side effects? I've also been told that this
>helps a lot with the side effecets. I'm trying to figure out if women
>have improvements with side effects and this drug with the add back.....
>or if these terrible side effects are more with the Lupron alone.
>I need to to make a decision about Lupron too so I'm trying to do all
>the research I can!
>
>--
>Marie
>
>At Thu, 25 Jan 2007, Erica wrote:
>>
>>I second Jessica's message. I won't go into detail because I've made
>>other posts about my experiences with Lupron but I had two injections
>>and am now suffering from severe joint pain (one of the side effects of
>>Lupron). I didn't think I could be in worse pain that what the endo
>>caused but I was wrong now I have this pain on top of the endo pain. In
>>my case it was not worth it and I think you will find many others if you
>>do the research. I also developed a skin reaction and taste adversion
>>to food. What I didn't know before I chose that treatment is that some
>>of the side effects last for months even if you decide to stop
>>treatment. In my case the side effects didn't really kick in until my
>>second injection. I know you have great hopes for this drug as did I
>>but please do your research or you could be getting much more than you
>>bargained for.
>>
>>At Thu, 25 Jan 2007, Jessica wrote:
>>>
>>>Im prob too late but I would never take Lupron agian eben if someone
>>>were to pay me thousands of dollars. i only had two injections and
>>>stopped takin it bak in 2004 and am still haveing side effects. I dont
>>>have time to ellaborate il just let you kno that Lupron gave or
>>>triggered a painfull disease in me that I will now have to live w/the
>>>rest of my life. I suggest you go under yahoo groups and search for
>>>Lupron Victims. Theres a group of women there who can tell you more
>>>abobut the experiences theyve had.
>>>
>>>--
>>>Jessica
>>>
>>>Thu, 25 Jan 2007, Olivia wrote:
>>>>
>>>>Did any of you do the adback progesterone therapy with the Lupron? I've
>>>>been told this helps a lot.
>>>>
>>>>At Thu, 25 Jan 2007, anonymous@obgyn.net wrote:
>>>>>
>>>>>Hi Ilea,
>>>>>
>>>>>I have done the Lupron route, as I too had endo they couldn't get
>>>>>out...stuck in those off the wall places.
>>>>>The shot itself hurts only a little bit. The injection site might be
>>>>>sore for a day or two. For the first couple of weeks your estrogen will
>>>>>sky rocket (be prepared for some emotional changes). After that, it
>>>>>drops to practically nothing. This part was easier for me than the
>>>>>increase. The hot flashes are frustrating, but if you can handle them
>>>>>you will be okay. Let me know if you have any questions.
>>>>>
>>>>>Cheers,
>>>>>
>>>>>Alexis.
>>>>>
>>>>>At Thu, 25 Jan 2007, Ilea wrote:
>>>>>>
>>>>>>I am having mu first injection today! I am really anxious/nervous. I
>>>>>>haven't been sleeping well for the last couple of days. If anyone has
>>>>>>gone this route, and could fill me in on what to maybe expect, it would
>>>>>>be greatly appreciated!!! My doc saud this was the way to go... since I
>>>>>>have endo everywhere,in places that she couldn't remove it from. The
>>>>>>plan is to hopefully preserve my right ovary, since the left one is not
>>>>>>functioning. I am scared! I am only 26 and hopefully I will be able to
>>>>>>still have kids in the future. Thanks for letting me vent!!!! Off I
>>>>>>go.....
>>>>>>
>>>>>>--
>>>>>>Ilea
>>>>>>=)
>>>>>>

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