Re: Any helpful Advice?
From: D (anonymous@obgyn.net)
Wed Jan 24 08:19:55 2007
find an endo specialist who can remove the disease thoroughly by
laparoscopic excision. There are links at the bottom of this that
should help.
Hormonal treatments are bandaids at best, they have many side effects
and usually (if they help in the first place) the endo comes back when
you stop them. You can only take Lupron for 2 6-month courses, so what
would you do after that?
Stay away from doctors who burn the endo off - it's ineffective because
they can't go deep enough to remove it all. Most women who have had
multiple laps had laser ablation or some other kind of burning off of
their endo, and it comes back.
It's good you are going to talk to your doctor - make sure you learn as
much as you can because most doctors don't know much about this disease.
You may find that you know more than the doctor! (if so, get another
doc)
At Tue, 23 Jan 2007, Tamara wrote:
>
>I am new to this group, so hello all. I was diagnosed with
>endometriosis a few years ago, I'm 33, and have had it since I was 14. I
>just started doing research online a couple of months ago, don't know
>why I waited so long. I have 6 sisters and we all cramp really bad, my
>mom used to also. I'm the youngest and am the only one who has taken
>the first step to see a dr about it. For years I thought it was just a
>part of being a woman, a symptom of pms. After making several great
>friends over the years I've come to realize that I 'am' different, they
>hardly have any pain during their monthly menstration and no pain during
>sex. I, on the other hand, am doubled over for at least 2 days a month.
>My dr did tell me yrs ago that the pain will decrease significantly
>after I have children. Not so sure about that, I have a 2yr old and a
>9mo old. I have moved so have a different dr now. The pain is the
>same, if not worse, it's truly unreal! I am scheduled for a pap in a
>month and will talk to my dr then to see what he suggests, but am scared
>to death. Being pregnant on and off for the last 3yrs and going through
>all the hormonal changes has really taken a toll on my marraige so this
>is why I am asking for some advise from anyone who is willing to
>give.....I am very scared about the treatment options because I feel
>like my postpartum depression has finally subsided. Does anyone have
>any clue what treatment options will not lead me further into more
>hormonal changes?? It's everything I can do to take great care of my
>babies while going through my periods every month (lasting a week). I
>just don't want to jeoperdize having more hormonal problems, my family
>doesn't deserve that. Having 2 girls, I really need to get this under
>control for them, in case they have inherited it. Thank you for
>listening and will take any advise! Tamara
>
>--
>Tamara Reich
>Family Home Investments,
>Realty Investing,
>Work from home and stay at home mom
>
--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/
Try an excellent endo support group:
http://groups.yahoo.com/group/erc/
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)