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Re: anyone have children

From: anonymous@obgyn.net
Sat Jan 20 15:59:38 2007


Thank you and i will make sure I check out the specialist..

At Fri, 19 Jan 2007, D wrote:

>
>I'm really sorry to hear how bad things are for you right now, I don't
>have children but I do have constant chronic pain and I know how mean it
>can make me at times. That is the thing about pain that you can't
>control everything it does to your personality, or I can't anyway.
>
>There are some things you might try that could help, if you haven't
>already. Finding an endo specialist who can thoroughly excise endo is
>the best chance for long-term relief. Many docs burn endo off with a
>laser or electrocautery, but the results are poor because they can't go
>deep enough to get it all. Endo can be excised from just about
>anywhere, but it cannot be burned off of sensitive areas like the
>bladder and bowel. There's a link to an "EndoDocs" yahoo group at the
>end of this message, it's a good place to search for a good doctor. You
>also might ask your obgyn or PCP for a referral to a pain management
>doctor. Endo can be extremely painful, and obgyns are often not
>comfortable prescribing and managing the meds needed to deal with it -
>that's what pain doctors do. My pain doctor has me on a drug patch
>that's helped a lot, and it's nice not to have to take so many pills.
>
>About the colonoscopy - it will only show endo if it's actually
>penetrated the bowel wall. My understanding is that is pretty rare,
>endo is more likely to be on the outer surface of the bowel or on
>something else near the bowel. I don't mean that you shouldn't have
>one, they are important for ruling out other problems but colonoscopies
>rarely help diagnose endo.
>
>At Fri, 19 Jan 2007, anonymous@obgyn.net wrote:
>>
>>At Fri, 19 Jan 2007, laura wrote:
>>>
>>>At Fri, 19 Jan 2007, tonya wrote:
>>>>
>>>>I have had two children both via c-section and not by choice. Since the
>>>>last pregnancy I have had the worst endo symptoms that I have had in
>>>>years. Having two children and living with this constant pain and mood
>>>>swings are destroying my family. My husband forgets that I am w/PMS and
>>>>has a hard time dealing with me. Things just fly out of my mouth and I
>>>>can't even stop it. Did anyone's symptoms get worse after children?
>>>
>>>I HAVE IT WORST SINCE I HAD MY 2ND CHILD. SHE IS 10 MONTHS OLD AND IT
>>>STARTED RIGHT AFTER SHE WAS BORN! CRAMPS ARE UNBELIVEABLE, THEY HURT SO
>>>BAD! MY BACK CONSTANTLY HURTS AND I DONT HAVE A SEX DRIVE ANYMORE! MY
>>>HUSBAND DOES NOT UNDERSTAND BUT IT HURTS SO THERFORE I DONT WANT TO HAVE
>>>SEX ANYMORE. I DONT KNOW WHAT I AM GOING TO DO.
>>
>>I have had three children now not by choice just everytime i tried to
>>prevent they came. After my second child i had the worst pain ever.
>>That is when they discovered I had endo. So my doctors did the surgery
>>then decided to put me through the lupron shots which is chemically
>>induced menopause.. That made me the worst person ever I had no sex
>>drive at all i hated everyone. I went through 6 months of treatment and
>>was taken off and gave continuous bc pills i was told there was no risk
>>of pregnancy for 2 years.. Two months later i was pregnant after the
>>birth of my son in August 2006 i had a blood transfusion for loss of
>>blood that they can't explain.. I am on the continuous bc pills again
>>but it does not help.. The pain is unbearable at times the worst is
>>when i spot i can't hardly move.. My husband hates me cause i have no
>>desire to ave sex i do it for him but it does not do anything for me..
>>He sometimes thinks i am cheating on him.. Now that the pain is so bad
>>my Ob has scheduled an colonoscopy to make sure it has not spread to my
>>bowels because i have been having irregular bowel patterns.. After that
>>i am going in for another laporoscopy in feb . If the surgery turns up
>>bad then i have to have it all removed.. I am 24 what do you do when
>>you are so young and you will be empty inside.. thank god i have 3
>>beautiful chidren maybe thats why they come so soon was because i would
>>have to go through with this.. I guess the reason i am wrighting this
>>is to say there is no cure there is nothing that helps long term.. It
>>is great that some people don't have the pain anymore after a birth of a
>>baby.. But I would not recommend trying that as a way to get rid of
>>it..I think i keep asking myself should i go through with all these
>>procedures or just live with it..
>>
>>--
>>Vickie
>>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>

--
Vickie



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