Re: anyone have children
From: D (anonymous@obgyn.net)
Fri Jan 19 22:22:30 2007
I'm really sorry to hear how bad things are for you right now, I don't
have children but I do have constant chronic pain and I know how mean it
can make me at times. That is the thing about pain that you can't
control everything it does to your personality, or I can't anyway.
There are some things you might try that could help, if you haven't
already. Finding an endo specialist who can thoroughly excise endo is
the best chance for long-term relief. Many docs burn endo off with a
laser or electrocautery, but the results are poor because they can't go
deep enough to get it all. Endo can be excised from just about
anywhere, but it cannot be burned off of sensitive areas like the
bladder and bowel. There's a link to an "EndoDocs" yahoo group at the
end of this message, it's a good place to search for a good doctor. You
also might ask your obgyn or PCP for a referral to a pain management
doctor. Endo can be extremely painful, and obgyns are often not
comfortable prescribing and managing the meds needed to deal with it -
that's what pain doctors do. My pain doctor has me on a drug patch
that's helped a lot, and it's nice not to have to take so many pills.
About the colonoscopy - it will only show endo if it's actually
penetrated the bowel wall. My understanding is that is pretty rare,
endo is more likely to be on the outer surface of the bowel or on
something else near the bowel. I don't mean that you shouldn't have
one, they are important for ruling out other problems but colonoscopies
rarely help diagnose endo.
At Fri, 19 Jan 2007, anonymous@obgyn.net wrote:
>
>At Fri, 19 Jan 2007, laura wrote:
>>
>>At Fri, 19 Jan 2007, tonya wrote:
>>>
>>>I have had two children both via c-section and not by choice. Since the
>>>last pregnancy I have had the worst endo symptoms that I have had in
>>>years. Having two children and living with this constant pain and mood
>>>swings are destroying my family. My husband forgets that I am w/PMS and
>>>has a hard time dealing with me. Things just fly out of my mouth and I
>>>can't even stop it. Did anyone's symptoms get worse after children?
>>
>>I HAVE IT WORST SINCE I HAD MY 2ND CHILD. SHE IS 10 MONTHS OLD AND IT
>>STARTED RIGHT AFTER SHE WAS BORN! CRAMPS ARE UNBELIVEABLE, THEY HURT SO
>>BAD! MY BACK CONSTANTLY HURTS AND I DONT HAVE A SEX DRIVE ANYMORE! MY
>>HUSBAND DOES NOT UNDERSTAND BUT IT HURTS SO THERFORE I DONT WANT TO HAVE
>>SEX ANYMORE. I DONT KNOW WHAT I AM GOING TO DO.
>
>I have had three children now not by choice just everytime i tried to
>prevent they came. After my second child i had the worst pain ever.
>That is when they discovered I had endo. So my doctors did the surgery
>then decided to put me through the lupron shots which is chemically
>induced menopause.. That made me the worst person ever I had no sex
>drive at all i hated everyone. I went through 6 months of treatment and
>was taken off and gave continuous bc pills i was told there was no risk
>of pregnancy for 2 years.. Two months later i was pregnant after the
>birth of my son in August 2006 i had a blood transfusion for loss of
>blood that they can't explain.. I am on the continuous bc pills again
>but it does not help.. The pain is unbearable at times the worst is
>when i spot i can't hardly move.. My husband hates me cause i have no
>desire to ave sex i do it for him but it does not do anything for me..
>He sometimes thinks i am cheating on him.. Now that the pain is so bad
>my Ob has scheduled an colonoscopy to make sure it has not spread to my
>bowels because i have been having irregular bowel patterns.. After that
>i am going in for another laporoscopy in feb . If the surgery turns up
>bad then i have to have it all removed.. I am 24 what do you do when
>you are so young and you will be empty inside.. thank god i have 3
>beautiful chidren maybe thats why they come so soon was because i would
>have to go through with this.. I guess the reason i am wrighting this
>is to say there is no cure there is nothing that helps long term.. It
>is great that some people don't have the pain anymore after a birth of a
>baby.. But I would not recommend trying that as a way to get rid of
>it..I think i keep asking myself should i go through with all these
>procedures or just live with it..
>
>--
>Vickie
>
--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/
Try an excellent endo support group:
http://groups.yahoo.com/group/erc/
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)