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So frustrated

From: anonymous (anonymous@obgyn.net)
Fri Jan 19 19:50:20 2007


I am really, really frustrated by my endo lately. I see my ob-gyn more than anyone I know. Sometimes, I'll be in so much pain or be bleeding so heavily that I get a pelvic exam and she cannot find anything new. I have migraines associated with my endo, bladder problems (interstitial cystitis), digestive problems, yeast infections or other infections caused by irritation from too much bleeding, and flat out exhaustion (I think I'm now anemic, just got tested last week). I've had to miss work because I'm so crampy or just so moody that I can't sit through a day. I'm so moody around the time of my period and my boyfriend, who is the most understanding and patient man I have ever met, is so supportive so I feel extra guilty when I snap at him. I feel disgusting when I just bleed continuously and keep having pain or infections. And I feel old for my age; most of the time I'm too tired to go party on the town and find myself happiest to be in a quiet place, like a restaurant or my apartment, with friends or my boyfriend.

Lots of people suggest therapy, which is helpful. But I am so frustrated by the thought of dealing with this for the rest of my life. I'm 24 and I've been fighting this since I was 16. I want so badly to have my own children someday.

I'm not really asking a question, but this is a forum where I feel I can vent to people who actually understand me, so here I am. I hate to dwell on the negative, but this has just really added so much stress to my life that it's hard to avoid.

Maybe hearing your stories will help. I know many of you have it worse than I do and I feel lucky that I've only had one surgery and have such a great doctor. But I am tired of taking pills, feeling sore, feeling sad. How do you all cope?




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