Re: Pain in area of 'tail-bone'
From: anonymous (anonymous@obgyn.net)
Wed Jan 17 19:54:11 2007
Pain at the bottom end of the tail bone:
There is a name for that pain though my brain refuses to bring it up to
the surface - somebody else might be able to come up with it... anyway,
it sorta feels like a pipe drilling upwards... imagine sitting on a
flagpole - if that's the one you're talking about then what you need to
know is that it is not exclusively related to endometriosis or Lupron.
It is not exclusive to women or body type or the use of Lupron.
It is caused by stress - and is the equivalent of hiccups in that the
pain is caused by spasms that are brought about by stress. The stress
can be from sitting or standing for too long - pressure from some other
condition (like endo, fibroids, etc.)
The only way to relieve the pain is by relaxing it - massage is the best
- use counterpressure massage and have someone press as hard as you can
stand it directly against where you feel the pain and just hold it for a
few minutes until you no longer feel any pain then SLOWLY release the
pressure. If the pain returns let the person rest their hand a bit and
then do it again. My husband and I both sit a lot in our jobs and this
is a common complaint in the evening - this is the only thing that gives
us fast and complete relief when it flares up and it always works.
If you don't have anyone to help you then use a tennis ball or something
of similar size and squishiness - or slightly softer if you're really
tender - and "sit" on the ball by pinning it against the wall with your
tailbone (it works out real well if you have stairs!) and gently,
carefully, roll the ball under you to keep the counter-pressure going -
when it feels like it's in the right spot press against it as hard as
you can stand and hold it for a good couple of minutes until the pain
stops then slowly release. You might have to do it a couple of times
but it will work.
Heat will work (hot pad, bath, shower) but takes longer - use after the
massage to get it further relaxed. Tylenol will take care of residual
aching.
Lower back pain in general will respond to the same type of massage,
relaxation, heat method too UNLESS caused by injury in which case you
should follow a doctor's advice.
>>>At Wed, 17 Jan 2007, D wrote:
>>>>
>>>>I agree, it could be a side-effect from the Lupron, but it also isn't
>>>>uncommon for women with endo to have pain in that area. I get pain in
>>>>the back of my thighs/butt that runs down my legs, and also down the
>>>>inside front of my thigh, and aches in my lower back (I never took
>>>>Lupron). What I've read is that the endo can be "retroperitoneal" or
>>>>behind the peritoneum on or near nerves, and/or ligaments, etc. Most
>>>>doctors don't look there - I know my old doc didn't when she did my lap.
>>>>
>>>>There's a "LupronVictims" support group on yahoo - maybe they would have
>>>>some insight?
>>>>
>>>>http://groups.yahoo.com/group/LupronVictims/
>>>>
>>>>But (in case it isn't completely obvious) I know some people don't want
>>>>to hear negative stuff about Lupron, so if you don't, don't join that
>>>>group! Personally, the risks of long-term negative effects are too much
>>>>for me to try Lupron, but just about every doctor I've seen has
>>>>suggested it - even after I tell them I won't take it, which I think is
>>>>rude for them to keep pushing it when I've said NO.
>>>>
>>>>Anyway, hope this helps.
>>>>
>>>>At Wed, 17 Jan 2007, Tara wrote:
>>>>>
>>>>>That is too strange... and it just seems to me a little unlikely that
>>>>>so many women with endo seem to experience the same pain... I have
>>>>>taken Lupron but that was almost two years ago... (though I must say
>>>>>that I do beleive I havent ever gotten over some of the side effects,
>>>>>maybe I sound paranoid... but I just havent really ever felt the same
>>>>>since taking it!)I don't know but you raise a good point, could this
>>>>>maybe be a long term side effect of Lupron????
>>>>>
>>>>>At Tue, 16 Jan 2007, Erica wrote:
>>>>>>
>>>>>>Tara,
>>>>>>
>>>>>>For about the past two months I have been having back pain. It
>>>>>>originally began as tailbone pain. My doctor told me that it was likely
>>>>>>that the endometriosis could be affecting many of the nerves near the
>>>>>>tailbone and therefore the body is perceiving it as tailbone pain.
>>>>>>However, the pain for me changed and I started having more right sided
>>>>>>tailbone pain and I went to a neurosurgeon who thought it may be my
>>>>>>sacroiliac joint (where pelvis connects to tailbone). However I hadn't
>>>>>>had any accidents or anything. I had a cortisone injection and it
>>>>>>didn't help. Now the pain is more generalized in my lower back but also
>>>>>>near my tailbone to where I have to sit on cushions and after a long
>>>>>>time it really starts to hurt. Its interesting because I've also
>>>>>>developed alot of other joint and bone pain as a side effect of having
>>>>>>Lupron injections. I have started to question whether my tailbone pain
>>>>>>was joint pain that was related to side effects of the Lupron and maybe
>>>>>>I twisted the wrong way or lifted something and it made the pain worse.
>>>>>>I've been on pain pills and rested and the back pain persists. To
>>>>>>answer your question in a word, no I have not had anything prove my pain
>>>>>>is related to endo. One of my questions for you and others out there is
>>>>>>that for those who are having this pain, have you all been on Lupron
>>>>>>around the same time? One of the side effects listed in some of the
>>>>>>Lupron studies is "spine compression" but this is not elaborated on and
>>>>>>so I am confused as to what that means.
>>>>>>
>>>>>>--
>>>>>>Erica
>>>>>>
>>>>>>At Tue, 16 Jan 2007, Tara wrote:
>>>>>>>
>>>>>>>I know many of you have stated that you also experience pain in the area
>>>>>>>of your tailbone. I was wondering though, how likely it is that this is
>>>>>>>linked ot Endo? My mom has had a bad back for as long as I can remember
>>>>>>>and always said that it originated around her tailbone. I'm set to have
>>>>>>>LAPEX surgery in March, and I'm sure my mind will be set at ease then,
>>>>>>>but I'm just contemplating whether or not I should have this checked out
>>>>>>>as maybe not being related to my Endo...
>>>>>>>
>>>>>>>The pain recently has become worse, sitting for long periods is not a
>>>>>>>piercing pain but a numbing one that is just so irritating...its gotten
>>>>>>>to the point where even laying down on my back hurts... I now sleep on
>>>>>>>my right side because my endo pain acts up when i sleep on my stomach or
>>>>>>>my left side!
>>>>>>>
>>>>>>>Has anyone had anything to prove this could be directly linked with my
>>>>>>>endo?
>>>>>>
>>>>>>--
>>>>>>Erica
>>>>>>
>>>>--
>>>>Find an endo specialist in the ERC's EndoDocs group:
>>>>http://groups.yahoo.com/group/EndoDocs/
>>>>
>>>>Try an excellent endo support group:
>>>>http://groups.yahoo.com/group/erc/
>>>>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)