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Re: Pain in area of 'tail-bone'
From: Alyson (anonymous@obgyn.net)
Tue Jan 16 18:39:11 2007
Erica,
Your post caught my attention because you mentioned having to sit on a
pillow because of the pain. My pain was never specifically tail bone
pain, but started as hip socket pain and what I identify as sciatic
pain. The pain shoots down through the outside of my legs and up
through my back. But, I also have pain low in the back of my pelvis
that spreads up into my back. I went to a physical therapist who said
my sacrum (which includes your tail bone) was twisted and tilted
(possibly form adhesions, but no way to confirm that). I went through
several months of PT, which made me feel better for a bit. Unfortunately
now I'm to the point of a giant pillow in the office chair along with a
heating pad on my back and have new pain shooting down my inner thighs.
I'm also a side sleeper and find that if I spend the night somewhere
with a hard bed or on an air bed I am in excruciating pelvic/endo pain
in addition to the back pain for days afterward.
I've never been on Lupron though.
Alyson
At Tue, 16 Jan 2007, Erica wrote:
>
>Tara,
>
>For about the past two months I have been having back pain. It
>originally began as tailbone pain. My doctor told me that it was likely
>that the endometriosis could be affecting many of the nerves near the
>tailbone and therefore the body is perceiving it as tailbone pain.
>However, the pain for me changed and I started having more right sided
>tailbone pain and I went to a neurosurgeon who thought it may be my
>sacroiliac joint (where pelvis connects to tailbone). However I hadn't
>had any accidents or anything. I had a cortisone injection and it
>didn't help. Now the pain is more generalized in my lower back but also
>near my tailbone to where I have to sit on cushions and after a long
>time it really starts to hurt. Its interesting because I've also
>developed alot of other joint and bone pain as a side effect of having
>Lupron injections. I have started to question whether my tailbone pain
>was joint pain that was related to side effects of the Lupron and maybe
>I twisted the wrong way or lifted something and it made the pain worse.
>I've been on pain pills and rested and the back pain persists. To
>answer your question in a word, no I have not had anything prove my pain
>is related to endo. One of my questions for you and others out there is
>that for those who are having this pain, have you all been on Lupron
>around the same time? One of the side effects listed in some of the
>Lupron studies is "spine compression" but this is not elaborated on and
>so I am confused as to what that means.
>
>--
>Erica
>
>At Tue, 16 Jan 2007, Tara wrote:
>>
>>I know many of you have stated that you also experience pain in the area
>>of your tailbone. I was wondering though, how likely it is that this is
>>linked ot Endo? My mom has had a bad back for as long as I can remember
>>and always said that it originated around her tailbone. I'm set to have
>>LAPEX surgery in March, and I'm sure my mind will be set at ease then,
>>but I'm just contemplating whether or not I should have this checked out
>>as maybe not being related to my Endo...
>>
>>The pain recently has become worse, sitting for long periods is not a
>>piercing pain but a numbing one that is just so irritating...its gotten
>>to the point where even laying down on my back hurts... I now sleep on
>>my right side because my endo pain acts up when i sleep on my stomach or
>>my left side!
>>
>>Has anyone had anything to prove this could be directly linked with my
>>endo?
>
>--
>Erica
>
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