ENDO Messages for January, 2007: Re: pain and alternatives

Re: pain and alternatives

From: Alyson (anonymous@obgyn.net)
Mon Jan 15 19:23:16 2007

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In reply to: Jolanda: "pain and alternatives"

Jolanda, I am so sorry to hear that you are in such terrible pain. I don't know if pelvic PT is quite the same as what I went through, but I had PT for about 3 months concentrating on realigning my pelvis. My sacrum was thought to be torqued from adhesions. It was excrutiatingly painful the first couple of sessions, but began to help after a little while. They used a tens unit to help aleviate some of the pain. I also saw an acupuncturist for almost a year. It was fantastic for relaxation and definately helped bring down my pain level. My pain was not gone completely, but became more and more tolerable. I would be happy to describe my experience in greater detail if you would like to e-mail me. Alyson

At Mon, 15 Jan 2007, Jolanda wrote: >
>This is my first post I was 14 when my pain first started but I didn’t
>get diagnosed until 2000 right after my 20th birthday. I have had 2
>laps and been on plenty of hormone meds and pain meds still nothing
>helps. I was also diagnosed with intercystial cystitis in 2002 to add
>to my discomfort. They only found a little endo each time but the pain
>is excruciating. The docs are all stuck they have nothing left they can
>do they are stumped. I am now 26 and don’t leave my house very often
>except to go to the doctors. I am now basically disabled I barely walk
>on my own I use a cane just to get around and i am always worried
>whenever i go somewhere if there are stairs because they are difficult
>for me. I am on a lot of pain meds and back on continous bc I have used
>lupron in the passed but no matter what i am always in pain i barely
>sleep because ican't get comfortable. A new doc has suggested trying
>pelvic physical therapy but when i read about it i was scared by it i
>have a hard enough time walking or washing my self that area is so
>sensitive. Has anyone else tried this or have any other suggestions.
>Jolanda

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In reply to: Jolanda: "pain and alternatives"

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