ENDO Messages for January, 2007: Re: Am I crazy?.....Oprah

Re: Am I crazy?.....Oprah

From: holly (anonymous@obgyn.net)
Thu Jan 11 13:45:25 2007

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In reply to: Vanessa: "Re: Am I crazy?.....Oprah"

i wonder if montel would listen if we mentioned the auto-immune aspect. he has multiple sclerosis, right? well, so does my dad. MS is an auto-immune disease, and there is a connection between many of them. several of my family members have auto-immune issues, and i have 3 auto-immune diseases or disorders myself. it's something to consider mentioning. it might get his attention that way.

just a thought.

i hate that drs are saying pain is normal. if my first few drs had listened to me years ago, things might be very different for me.

~holly mild endo and IC

At Wed, 10 Jan 2007, Vanessa wrote: >
>Hi,
>
>I have to say I was upset as well. I have written to her, like many of
>you, on several occasions about endo but I have never gotten a response.
>I had even responded to that same embarassing medical problems theme and
>still, no response. We all know how embarassing this disease can be.
>Uncontrollable pain at the worst time and in the worst places.
>Embarassing period problems, as well as all the embarassing side effects
>that come because of endo (bowel issues, bladder issues, stigma related
>to public belief that this is a mental problem that can be 'thought
>away', along with a multitude of other issues)and especially because of
>the Endo treatments and medications. It seems like she is absolutely
>trying to avoid the issue totally, for whatever reason. If positioned
>in the proper way a show about Endo can get high ratings as well.
>
>--
>Vanessa
>

Next message: har: "Re: endo and exercise pls respond"
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In reply to: Vanessa: "Re: Am I crazy?.....Oprah"

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