|
Re: Am I crazy?.....Oprah
From: Tara (anonymous@obgyn.net)
Thu Jan 11 10:57:26 2007
I with you guys on whatever we need to do to make this disease more real
to the world. It seems that most people don't understand it. I myself
had never heard of it until I was diagnosed. Some people think it is
just a sexual pain disorder, and it has taken a lot to educate my
family, friends, and boyfriend about this subject and not have to get to
in-depth with acquaintences. Sometimes I feel like I don't have a
choice because it effects my life so much than to have to educate people
about it, and someone like oprah or montel should be helping us!
~Tara
At Thu, 11 Jan 2007, Katie wrote:
>
>I agree with Elisa to Cc: Montel - it can't hurt. I do think it's
>appalling at the number of women with Endo and we are being ignored.
>I'll be watching posts too - I'm a little excited. All of those times
>while I sat in tears at the computer emailing Oprah with no luck - maybe
>something good will happen out of this. My husband and I are in the
>beginning works of planning an Endo benefit with local bands (we live in
>Strathroy Ontario Canada) for the summer of 2008. We had wanted to do
>it this summer but the town took a little long replying back to us
>initially. We are very excited - every little bit will help to find a
>cure!
>Katie
>
>At Thu, 11 Jan 2007, Elisa wrote:
>>
>>Hi Alyson and All~
>>
>>You let me now how and when we can do this and I am here for you too.
>>The only suggestion I would still make is to at least Cc: Montel (even
>>though he may not seem to want it) is because when he realizes #1 that
>>women have been contacting Oprah and to no avail..they may say hmmm...
>>
>>The other reason is with his experience of being sick with MS and taken
>>down to a humble place may now make him more receptive. Remember the
>>times we
>>walked and thought..It's not happening to me, I can't understand. While
>>it's
>>not the same illness the ignorance is still the same.
>>
>>Thanks again! I will look for posts as they come through.
>>
>>Have a great day!
>>
>>--
>>Elisa
>>
>>At Thu, 11 Jan 2007, Alyson wrote:
>>>
>>>Wow ladies! I wish I had been at my computer last night to see this
>>>response!
>>>I was a bit nervous about posting my feelings in the first place. I
>>>just thought, how can a Cedar's Sinai ObGyn be so irresponsible...When I
>>>hear someone that "qualified" say something (or not say anything) like
>>>that I start to second guess myself. I am happy to see that 1)I'm not
>>>nuts and 2)You all had the same reaction I did. I am all for a massive
>>>write in, but I think its going to take more than the six or seven of us
>>>that are aggravated about it on this board. Any ideas on how to reach
>>>more women about it to get a truly massive response?
>>>Alyson
>>>
>>>At Thu, 11 Jan 2007, amber wrote:
>>>>
>>>>Give me the contact details for oprah i will write in as well. Even if
>>>>im from Australia it may just help..
>>>>
>>>>--
>>>>Amber
>>>>
>>>>At Wed, 10 Jan 2007, D wrote:
>>>>>
>>>>>This isn't the first time I've heard complaints about how Oprah totally
>>>>>IGNORES endo. You aren't crazy, that doctor was out of their league,
>>>>>and how they got on Oprah I don't even want to know.
>>>>>
>>>>>--
>>>>>Do you have the contact info? If I saw that show I would definitely
>>>>>write, and if you post it here, I will anyway!
>>>>>
>>>>>You are not nuts! and so if it isn't "uncommon" - it still isn't
>>>>>"normal"!! Jeebus that just makes me mad!
>>>>>
>>>>>And of course there was no mention of how motrin (especially at the
>>>>>doses they recommend for endo) is itself a dangerous drug - that stuff
>>>>>gave me ulcers.
>>>>>
>>>>>GGGRRRRRRRR!!!
>>>>>
>>>>>That doctor should have told that girl to find an endo specialist who
>>>>>will remove all of her endo by excision. It's a good example of how
>>>>>just because someone is an obgyn it doesn't mean they know diddly about
>>>>>endometriosis.
>>>>>
>>>>>And thanks for a chance to vent a bit - I'm on continuous BCPs, but my
>>>>>pain still cycles and I'm definitely "PMSing" right now. ;-)
>>>>>
>>>>>And how sad that her pain is considered an "embarassing question" - I'd
>>>>>really like to see people get past that kind of thinking. Endo is a
>>>>>serious, sometimes debilitating disease - it's nothing to be embarassed
>>>>>about!
>>>>>
>>>>>At Wed, 10 Jan 2007, Alyson wrote:
>>>>>>
>>>>>>OK, so I was watching an Oprah episode from earlier in the week that was
>>>>>>discussing embarrassing questions. She had an ObGyn from Cedar's Sinai
>>>>>>Hospital on and a girl was asking her about painful cramps. She
>>>>>>described her cramps as being so severe as to not be able to get out of
>>>>>>bed sometimes, vomiting, and so painful as to reduce her to tears. The
>>>>>>doctor responded by saying that this is not uncommon and she should use
>>>>>>a heating pad and take Motrin beginning two days before she expects her
>>>>>>period to start or go on birth control pills. No mention at all of
>>>>>>endo, fibroids, etc.
>>>>>>Now, from what I've read it is completely not normal to have such severe
>>>>>>cramping with your period and that kind of pain is indicative of
>>>>>>endometriosis or fibroids. I want to write in and pitch a fit, but am I
>>>>>>nuts?
>>>>>>Alyson
>>>>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)