Re: Am I crazy?.....Oprah
From: anonymous@obgyn.net
Thu Jan 11 08:43:36 2007
Hi ladies,
I'm on board with this one too...have written Oprah numerous times, no
response. I didn't see the episode but i am outraged at the ignorance
of this doctor. How about contacting media...we need to find out who
doesn't like Oprah (with money and pull) and go to them with our story.
I am sure that someone like that would be more than willing to tell our
story.
I too believe that the teenage band wagon is the way to go. Like many
of you I have been suffering since I was 16 and only diagnosed 5 months
after my 25th birthday.
Anything anyone can think of to help, I'm in. I have time and skills to
use. I have fundraised for a few organizations and I don't see why I
shouldn't fundraise to benefit myself and those suffering the way I do
on a daisy basis.
Press on...
Alexis.
At Thu, 11 Jan 2007, Alyson wrote:
>
>Wow ladies! I wish I had been at my computer last night to see this
>response!
>I was a bit nervous about posting my feelings in the first place. I
>just thought, how can a Cedar's Sinai ObGyn be so irresponsible...When I
>hear someone that "qualified" say something (or not say anything) like
>that I start to second guess myself. I am happy to see that 1)I'm not
>nuts and 2)You all had the same reaction I did. I am all for a massive
>write in, but I think its going to take more than the six or seven of us
>that are aggravated about it on this board. Any ideas on how to reach
>more women about it to get a truly massive response?
>Alyson
>
>At Thu, 11 Jan 2007, amber wrote:
>>
>>Give me the contact details for oprah i will write in as well. Even if
>>im from Australia it may just help..
>>
>>--
>>Amber
>>
>>At Wed, 10 Jan 2007, D wrote:
>>>
>>>This isn't the first time I've heard complaints about how Oprah totally
>>>IGNORES endo. You aren't crazy, that doctor was out of their league,
>>>and how they got on Oprah I don't even want to know.
>>>
>>>--
>>>Do you have the contact info? If I saw that show I would definitely
>>>write, and if you post it here, I will anyway!
>>>
>>>You are not nuts! and so if it isn't "uncommon" - it still isn't
>>>"normal"!! Jeebus that just makes me mad!
>>>
>>>And of course there was no mention of how motrin (especially at the
>>>doses they recommend for endo) is itself a dangerous drug - that stuff
>>>gave me ulcers.
>>>
>>>GGGRRRRRRRR!!!
>>>
>>>That doctor should have told that girl to find an endo specialist who
>>>will remove all of her endo by excision. It's a good example of how
>>>just because someone is an obgyn it doesn't mean they know diddly about
>>>endometriosis.
>>>
>>>And thanks for a chance to vent a bit - I'm on continuous BCPs, but my
>>>pain still cycles and I'm definitely "PMSing" right now. ;-)
>>>
>>>And how sad that her pain is considered an "embarassing question" - I'd
>>>really like to see people get past that kind of thinking. Endo is a
>>>serious, sometimes debilitating disease - it's nothing to be embarassed
>>>about!
>>>
>>>At Wed, 10 Jan 2007, Alyson wrote:
>>>>
>>>>OK, so I was watching an Oprah episode from earlier in the week that was
>>>>discussing embarrassing questions. She had an ObGyn from Cedar's Sinai
>>>>Hospital on and a girl was asking her about painful cramps. She
>>>>described her cramps as being so severe as to not be able to get out of
>>>>bed sometimes, vomiting, and so painful as to reduce her to tears. The
>>>>doctor responded by saying that this is not uncommon and she should use
>>>>a heating pad and take Motrin beginning two days before she expects her
>>>>period to start or go on birth control pills. No mention at all of
>>>>endo, fibroids, etc.
>>>>Now, from what I've read it is completely not normal to have such severe
>>>>cramping with your period and that kind of pain is indicative of
>>>>endometriosis or fibroids. I want to write in and pitch a fit, but am I
>>>>nuts?
>>>>Alyson
>>>
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