ENDO Messages for January, 2007: Re: A Rant

Re: A Rant

From: anonymous@obgyn.net
Wed Jan 10 17:46:34 2007

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Hi Stacey -

While Lupron does help some women, it also has a lot of side effects and there is no way to know how it is going to effect you before you take it. My personal opinion is that it's too risky, but I also have two sisters that both have autoimmune diseases, and Lupron is known for causing autoimmune-type problems. Many women get bone and joint pain, too - and it doesn't always go away when the drug is stopped. Additionally it will throw you into chemical menopause, with all the symptoms that go with that - bone loss, breast shrinkage, hot flashes, etc.

Besides, if they removed all your endo, you should not need Lupron!

I'm really glad you are researching this before you take it. I don't think you sound bitter - I think you sound kinda mad, and that is so understandable!

You didn't say if you are having pain now or not? I hope not! In any case, many endo specialists will review your records (sometimes they charge money), and maybe that would be a good way to get another opinion?

I'm so sorry, too - I read so many posts from women whose doctors just do not understand endo, and I've been through many of them myself...

I hope this helps!

At Wed, 10 Jan 2007, Stacey wrote: >
>So, this is my first post and I feel the need to vent. Mostly because
>some of you will have, unfortunately, gone through the same experience.
>I only found out I had endo. when I had my son via c-section 3 years
>ago. My gyno said it was probably one of the worst cases she had ever
>seen. Yeah, nice. I basically had no knowledge of endo. and my gyno.
>did not aggresively suggest any suppression of my condition. So, flash
>forward to November 2006 when it was discovered that I had a football
>size endometrioma taking over one of my ovaries. Please take note that
>I hardly felt any pain at all during this whole time!! I only went in
>for my annual pap smear. So, after about a month of thinking I was
>dying of cancer, they finally cut me open (the long way) to get it out.
>It was not cancer and I am sincerely grateful. I guess I am quite upset
>that I did not take further steps to educate myself about endometriosis.
>I had no idea whatsoever that it could grow large masses in your body!
>I'm getting ready to start a course of Lupron and would like to hear
>from others as to their experiences with this drug. I don't even like
>to take asprin so taking medication like this gives me pause. Sorry for
>this thread to sound so bitter but I just want others to take time to
>research their condition fully. Thanks for listening!!

Next message: Monica: "Re: Endometriosis??"
Previous message: Elisa: "Re: Am I crazy?.....Oprah"
In reply to: Stacey: "A Rant"
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