ENDO Messages for January, 2007: Re: Endometriosis??

Re: Endometriosis??

From: Alyson (anonymous@obgyn.net)
Wed Jan 10 13:03:27 2007

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Marie, The symptoms you are describing are not uncommon to endometriosis. I for one have every one of them along with sciatic pain and bowel problems. The leg pain shoots down the insides of my thighs and just started a few months ago (hooray). I think the exhaustion is one of the hardest aspects to cope with. It is hard to believe you can be so wiped out without having done much. I think our bodies fight the pain and disease so hard that it just saps your energy. I don't know of any endo specialists in Iowa, but always suggest going to the Endo Victims web site. You can google either "endo victims" or "endo docs" to get the url. They have a great patient recommended list according to state, along with several links to other doctor resources. I was on Seasonale following my first sugery and also had alot of problems with it. I am not a fan at all! If you are looking for more info on endometriosis, try www.endo-resolved.com, http://www.morehead.org/wellconnected/000074.htm There is also a book, The Endometriosis Sourcebook. It gives a great pro vs. con look at all of the treatment options available. Alyson

At Wed, 10 Jan 2007, Marie wrote: >
>I am wondering if any of you have leg pain/aching with your
>endometriosis? I am scheduled to have a laparoscopy in a few weeks for
>suspected endometriosis. I have had abdominal pain that has gotten
>worse and is now there every day of the month for the last 8 months
>since stopping birth control pills (which by the way I was on Seasonale
>for 9 months and had break through bleeding for 4-6 weeks at the end of
>every 3 months, it was not a good pill for me at all!)
>It started out with monor cramping at mid-cycle that would pretty much
>be there through my period and then would progressively get better. But
>each month has gotten worse and now I get pain and leg weakness a few
>days before my period with little appetite. Then after my period the
>weakness gets better but doesn't completely go away... now I have
>aching down my thighs in both legs that at times goes all the way down
>to my ankles at all times of the month. I get deep pain with sex, which
>has been there for last couple years but has progressively gotten worse
>to the point where it's there all the time. During and for about 2
>weeks after my periods I also have extreme fatigue and I feel like I
>have the flu all the time.
>Does this sound like endometriosis, and if so is there any one else out
>there that has these symptoms? I can really use any info I can get. I'm
>a mom of 3 little boys and whatever this is is controlling my life!! The
>leg aching now is making it especially hard the last week! And of course
>the tiredness!
>One more thing... does anyone know of any endo specialists in Iowa??
>
>--
>Marie
>

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