Re: I'm in the gang!
From: Alyson (anonymous@obgyn.net)
Wed Jan 3 08:20:43 2007
Back pain is pretty common with endometriosis. It is usually discussed
with reference to the sacral ligament. Endo can invade the ligament
(which attaches your uterus to your back) causing aggravation of those
nerves which in turn translates to the back pain. Some surgeons will
perform a sacral nerve ablation where they cut the nerves in the
ligament to prevent them from transmitting that pain signal to the back.
I had it done during my last laproscopy and it really helped. I'm not
pain free, but the back pain is significantly better.
As far as the pelvic pain, do you mean in your hips? Alot of us describe
having sciatic pain. It feels like pains shooting through your hips,
down your legs, etc. I think many of us have had a hard time getting
that diagnosed, but feel that it does have something to do with the
endo. There is such a thing as sciatic endo (endo growing on the
sciatic nerves) but, doctors feel that it is pretty rare. I am
currently dealing with that and don't know if the endo is just growing
near there and causing problems, or is actually on the nerves.
--
Alyson
At Tue, 2 Jan 2007, Debbie wrote:
>
>I had my first lap in December and finally Endo was diagnosed.
>Yippee...welcome me to the gang! (Much sarcasm). The doc took pics and
>I can clearly see Endo on my uterus and ovaries. My right ovary was
>adhered to my pelvic wall so that was released. I was told that my Endo
>is stage 1 on my uterus and stage 2 on my ovaries. The thing is, is
>that my pain is in my pelvis and lower back and it's now pretty much
>constant and quite debilitating. I'm having trouble bending down and
>sitting in certain chairs and the doc said he couldn't see down far
>enough to see that area of my pelvis and has referred me to an Endo
>pelvic specialist. Has anyone experienced really bad back and/or pelvic
>pain with this disease? I do have uterine pain but it's worse after sex
>or near to my period. The other pain is there all the time, although it
>started off as cyclical. I've had an MRI and am pretty confident this
>is Endo related.
>
>Also, the worst part of this disease for me is the PMS symptoms. I get
>extreme fatigue round about day 14 of my cycle and also depression,
>irritability, aggession and basically everything in my life falls apart.
>I feel so out of control during this time I can barely function, and yet
>right after my period I feel full of energy and am happy and productive.
>I have changed my diet and am using Progesterone cream which has helped
>knocked the edge off, but this aspect of Endo is driving me nuts. Life
>feels like a battle during the last 14 days of my cycle and half of each
>month is a washout. I am against taking any hormones and want to battle
>this naturally. Do any of you have any suggestions of have any tips
>that have helped you?
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)