ENDO Messages for December, 2006: Lupron.. taste adversions..back pain?

Lupron.. taste adversions..back pain?

From: Erica (anonymous@obgyn.net)
Sat Dec 30 17:22:07 2006

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I'm trying Lupron again for the second time around (tried it a year ago). After my second injection I've started experiencing different side effects than I did previuosly. Along with occasional hot flashes I've developed decreased breast size and this terrible taste in my mouth particularly when I eat or drink. Its kind of like a film but really it just makes food and drink taste bad. I'm noticing my lips even feel like I have chapstick on when I don't. Its making my appetite change to where I'm not eating what I normally want to and even get nauseous after eating/drinking. Water even tastes whierd so I know something is going on. I've had this for about 2 weeks now. I researched the side effects and it lists "taste disorders/perversion" in the Lupron studies but doesn't elaborate on it at all.

Also, recently I've developed severe back pain in my lower back. The doctors are telling me that they think its my sacroiliac joint and I had an epideral done and it didn't help. Its starting to feel like a ruptured disc. I know that Lupron can cause joint and bone pain. Is it possible to cause severe back pain? The neurosurgeon asked me if Lupron can cause similiar side effects b/c she wasn't familiar with that drug but I'm not sure who would know if this is whats causing it. I haven't done anything to injure it, no falls, accidents nothing. It came on pretty suddenly after my second injection. I go back to the neurosurgeon soon and think I'm going to demand an MRI. I'm supposed to have a third injection done in a week and I'm really scared that the Lupron may make my back pain worse or keep it from healing. I know it sounds a little crazy but ANY advice or experiences would be greatly appreciated. I really wanted to give this Lupron a decent shot to help my endo but I don't know how much longer I can cope with this back pain....Thanks ladies.

--
Erica

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