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Re: questing Information about Lupron and Endo SpecialistFrom: Danielle (anonymous@obgyn.net)Thu Dec 28 18:03:40 2006
At Wed, 27 Dec 2006, Amy wrote: > >Hi Pam! You can research back through the forum archives for all kinds >of posts about Lupron, good and bad. It is a hard decision to make, but >one you need to make for yourself. Just do all the research and make a >decision best for you. I have done Lupron twice with great success. >Each time the pain is gone within a few weeks of starting the shot and I >tend to stay pain free for a year or more after stopping. I am one of >the lucky ones who tolerate it well. I do not seem to have any long >term side effects and while on the shot, the side effects I had were >pretty manageable. I did have hot flashes and night sweats and an >occasional mood swing. These were worth it to me because I had no pain >and for once felt "normal". I even lose weight while on it, which was a >nice plus! but seemed to just be water weight I think I hold when taking >birth control. The weight comes right back on once I get back on my >pills. > >I chose to do Lupron after much research and feeling like I had no other >options. It was a very personal decision. My endo was very bad and >although I do not want children, I was not ready to face hysterectomy. I >debated for a couple years before I finally decided to try it as a last >resort. I did it again in 2004, for the same reasons: endo was really >bad and I was not ready for radical surgery. It is a temporary fix, the >endo is already getting bad for me again, but for me, a couple years of >little or no pain was worth the risk of Lupron. I probably will not do >it again, just because I am tired of "band-aiding" the endo and am just >trying to ride things out a few more years before I go for hsyto. I >wanted to post a positive story so you can see both sides of it-many >women have not had good experiences with it. Just do plenty of research >and look for unbiased opinions, such as sites not sponsored by TAP, who >makes the drug. (I think Jenn also warned of TAP sponsored sites). If >you decide it is not for you, do not let any doctor push it on you. TAP >has been sued in the past for giving kick backs to doctors who push the >drug. In my case, my doctor didn't push it, just suggested it and I >made the decision based on my own research and situation. > >Please feel free to email me direct if you would like to talk more. I >hope that whatever you decide to do, you find some relief soon. > >Hugs! I hope you, and anyone else reading this, has some pain free days >soon! >Amy Meyer > >At Wed, 20 Dec 2006, Pam wrote: >> >>Hi everyone. Sorry I haven't been on. I am still hurting pretty bad. >>My GYN wants to start me on the Lupron shot. I wanted to do some >>research before I actually decided to take the shot or not. >> >>I would like to hear some of your opinions about the Lupron shot. (good >>and bad) Also if anyone knows of any web-sites where I can get some >>information about it; that would also be very helpful. >> >>I am also having some issues with my GYN. I was wanting to find a >>specialist to go and see, if possible. I live in TN about two hours >>from Knoxville. If anyone knows of an Endo Specialist that they could >>recommend I would be very greatful. If no one knows of one that they >>can recommend, can you please let me know how I can find one? >> >>Thanks to everyone for helping me. >> >>Wishing pain free days to all....Pam *************************************************************************** Hi Pam, -- My name is Danielle. Two weeks ago yesterday, I had a laparoscopy, DNC, and a cyst drained. Prior to having these procedures done, I had hot flashes, restless nights, very bad pains on the outer thighs, and several other symptoms of early menopause. My doctor said I had very bad endo and a very large cyst. I used to be on an IUD and that was removed as well. That I had for 4 years. My reason for writing is out of complete frustration as I just got over having my period this past week and felt pretty much exactly the same as I did before the procedures. My doctor recommended the Lupron, but I am terrified of becoming an emotional mess from it because when I tried the pill 15 yrs ago, I would cry over everything. Did you have hot flashes and leg pain after you procedures? Has anyone reading this experience anything similar to what I am explaining here.
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