Re: question to Jesika
From: D (anonymous@obgyn.net)
Fri Dec 22 12:37:41 2006
Hi Jesika -
There are a few Australian endo specialists listed on this site:
http://www.geocities.com/endovictims/endodocs.html
Sorry I don't know anything about them. Unfortunately, most
gynecologists are not "endo specialists" and don't know enough about the
disease to really help you with this. There are a lot of very nice
gynecologists who are perfectly competent in their usual practice - but
they can't help us with endo because they just don't have the skills. Of
course, some of them are more willing to admit this than others...
I think the best thing you can do is learn as much as you can about
endo, and start looking for a specialist. Has your doctor offered you
Lupron? Please research any drugs/hormones they might want to give you
very carefully before you take them! Lupron is one that gives many women
bad side effects (sometimes they don't go away) and doesn't even always
help.
The Endo Research Center has a great support group on yahoo:
http://health.groups.yahoo.com/group/erc/
Be sure to look in the "files" section, there are some good informative
documents you can download.
Hope this helps!
D.
At Fri, 22 Dec 2006, Jesika wrote:
>
>im seeing just a gynecologist, i havnt been able to find an
>endometriosis specialist anywhere near me (aus)id like a second opinion,
>however i had to wait three months just to have an appointment with the
>current specialist, and it will be just as bad everywhere, in another
>three months i will be moving to another state, so there isnt much i can
>do atm.
>as for pain, its really quite bad, the second time wasnt as bad as the
>first, but its still enough to keep me from sleeping or moving.
>my specialist seems very reluctant to confirm or deny anything. basicly
>she gave me slightly stronger pain killers. then when that didnt do
>much she put me on a different type of pill, which is where i am atm
>
>At Tue, 19 Dec 2006, anonymous wrote:
>>
>>What kind of specialist are you seeing? An endometriosis specialist? You
>>can always get a second opinion. Is it causing you pain? What kind of
>>options is this specialist offering you?
>>
>>At Tue, 19 Dec 2006, Jesika wrote:
>>>
>>>the thing is ive never had surgery, although my doctor and i think that
>>>endometriosis is very likely, my specialist is reluctant to take me
>>>seriously, and therefore wont consider any surgical diagnosis
>>>
>>>At Tue, 19 Dec 2006, D wrote:
>>>>
>>>>You should talk to your doctor about these symptoms, but it sounds like
>>>>it may be adhesions - scar tissue that binds tissue and organs together.
>>>>Endo can cause adhesions, and frequently they form after surgery. Here's
>>>>a website that may help:
>>>>
>>>>http://www.adhesions.org/
>>>>
>>>>Good luck!
>>>>
>>>>At Tue, 19 Dec 2006, Tara wrote:
>>>>>
>>>>>I know exaclty what you mean...I get this feeling frequently... and its
>>>>>funny that you should describe it the same exact way that I have, it
>>>>>feels exactly like a string is attached to my belly button and even the
>>>>>smallest amount of stretching or movement pulls it furiously...almost
>>>>>feels like something is being torn. I just asked my doctor about this
>>>>>recently but unfortunately I didnt get much of a response back. I have
>>>>>often wondered if this could be scar tissue from my Laparoscopy... or
>>>>>maybe just endo that has formed together and is tearing. It worries me
>>>>>a bit as well, but I'm not sure what it could be.
>>>>>
>>>>>At Tue, 19 Dec 2006, Jesika wrote:
>>>>>>
>>>>>>a little while ago, and again recently ive had the strange pain in my
>>>>>>abdomen. basicly is behind my belly button. i know this will sound
>>>>>>strange, but it felt like someone had put a hook through the back of by
>>>>>>belly button, attached string to it and tied it to my spine, so
>>>>>>everytime i moved or breathed, it tightened the string and the hook hurt
>>>>>>even more...like i said, sounds strange but thats exactlly what it felt
>>>>>>like.
>>>>>>has anyone had anything like this before? should i be worried?
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)