Re: questing Information about Lupron and Endo Specialist - to Amber
From: D (anonymous@obgyn.net)
Thu Dec 21 17:05:43 2006
Amber -
That is great news about your HMO approving the CEC! Thank you for the
encouragement, and for fighting your HMO!
Everytime one of us wins the right to treatment with REAL endo
specialists it raises awareness of the disease that much more, and
hopefully they will start to realize how serious this disease is, and
that there are good treatments available. It's been quoted here
recently, but it's almost always worth repeating that excision
specialists have recurrence rates of 20% or less after 5 years.
Battling an HMO is hard work, and I really do believe that your work
will benefit other women who may come after you. Thank you!
D.
At Thu, 21 Dec 2006, Amber wrote:
>
>Pam,
>
>I have not tried Lupron, but to me it is not worth the possibility of
>all of those side effects. I tried Norethidrone for 30 days and it was
>horrible and they said that is what they would give me to help with the
>side effects of the Lupron, no thanks, so I canceled the Lupron
>injection. I have done tons and tons of research over the past 18
>months and have deciced to have exicision surgery with Dr. Sinervo at
>the Center for Endometriosis Care in Atlanta. I have yet to hear one
>negative thing about these doctors and this center. I see two gyn
>specialist in my area and they both referred me there saying it was the
>best place to go. After 6 months of battling with my HMO they finally
>approved me to have surgery on Feb 14th! So many women from this forum
>and the CEC's references helped me get there, with out them I don't know
>what I would have done.
>
>At Wed, 20 Dec 2006, Pam wrote:
>>
>>Hi everyone. Sorry I haven't been on. I am still hurting pretty bad.
>>My GYN wants to start me on the Lupron shot. I wanted to do some
>>research before I actually decided to take the shot or not.
>>
>>I would like to hear some of your opinions about the Lupron shot. (good
>>and bad) Also if anyone knows of any web-sites where I can get some
>>information about it; that would also be very helpful.
>>
>>I am also having some issues with my GYN. I was wanting to find a
>>specialist to go and see, if possible. I live in TN about two hours
>>from Knoxville. If anyone knows of an Endo Specialist that they could
>>recommend I would be very greatful. If no one knows of one that they
>>can recommend, can you please let me know how I can find one?
>>
>>Thanks to everyone for helping me.
>>
>>Wishing pain free days to all....Pam
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