ENDO Messages for December, 2006: Re: problems with bowels

Re: problems with bowels

From: Ami (anonymous@obgyn.net)
Sun Dec 17 19:26:21 2006

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In reply to: anonymous@obgyn.net: "Re: problems with bowels"

At Sun, 17 Dec 2006, anonymous@obgyn.net wrote: >
>At Fri, 8 Dec 2006, Ami wrote:
>>
>>i have been having problems when i am going to have a bowel movement. It
>>hurts so bad. I had a hysterectomy partial 4 weeks ago. I had these
>>same pains before the surgery and now they are coming back. I dont know
>>if someone else gets this. Any advice would be helpful? What do you
>>think this is ? Could it be endo on my bowel? thank you guys for all the
>>support.
>
>--
>Dear Ami,
>
>I am sorry you are still in so much pain.
>I have stage IV+ Endo, I have struggled with it for 25+years, had 13+ surgeries and
>procedures, saying nothing of the vast meds etc... that I have tried along the way,
>nothing about having, or trying to find anything to help us with it is easy, those
>of us who suffer with it, are a very strong group of women to be able to cope, and
>carry on looking as we do.
>My endo is extensive, but my major issue now is having the endo and severe and extensive
>adhesions to my bowel and intestines from it, and the many surgeries I have endured.
>It is to the point where my bwl/intsn, are almost closed off in a few places. B/c of
>their location and the issue of having even more surgeries only causes more adhesions,
>I can no longer have any surgeries until it is a life and death situation,
>with total occlusion, obstruction or rupture taking place which makes emergency
>surgery necessary. To avoid this and cope with the pain, I must use a nightly
>purgative to turn the contents inside from what I have eaten during the day to
>a watery substance so it can pass through those narrowed places along the path out.
>
>When I first started suffering with the pain from the adhesions, it came about as severe pain
>and nausea/vomiting, as food passed through those narrowing spots the adhesions had attached to,
>over time it became unbearable, with the severe nausea and vomiting as the contents reaches those
>places of narrowing until it was out.
>Before the adhesions were so bad, it was painful while it passed through the spots that the endo itself
>was attached to, (worse during my period), but when the adhesions got bed, it turned to unbearable.
>About an hour or two after eating, until it is voided completely, there are waves in intense pain
>as it goes through the digestive tract and voiding is finished.
>
>In my case, that is what it is like to have endo and adhesions on my bowels and
>intestines, so if any of this sounds like what you go through, you may have endo there,
> or perhaps you are now starting to feel some effects of adhesions to those organs.
>My case is severe, so don't worry that if you do this is what you have to look forward to,
>I never stopped having the surgeries that the Dr's said would help, they just made it
>worse by causing even more adhesions, I wish I knew then when to have left it and did the
>best I could to cope, but we all search to be totally pain free, and unfortunately,
>I was one who it was best to just cope with what I had.
>
>Every surgery we have results in some adhesions, where, what to, degree, etc...
> one gets them is individual, if adhesions attach themselves to anything like a
> muscle, the intestine, bowel, ovary, etc... pushing to void can cause sharp pains,
>nausea, vomiting then, b/c the area is irritated, it can leave throbbing pain
>after you are finished.
>
>I hope this discription of what endo and adhesions to the int/bowel helped,
>if you need to ask anything further, feel free to write me personally, or post to me
> anytime, I am only too happy to share what I know on this subject.
>
>I wish you the best, Loretta
>Happy holidays!
>

First of all i am sorry yours is so bad. Mine i am noticing now more then ever is happening after i eat until i void its cramping and sharp pains. I am going to call my doctor tomorrow and see what he says. ^Thank you for the advice and sharing your story though. Good luck and i wish you pain free days.

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