Re: Endo after Hysterectomy and Oopherectomy
From: anonymous (anonymous@obgyn.net)
Sat Dec 16 18:17:27 2006
Hi Katya -
I like your site, the mp3 of your pre-op was great! I agree it is
important to spread the word about endo.
I'm glad to hear you are going to see Dr. Cook, I've gotten many, many
recommendations for him, too, and I'm also working out my insurance so I
can have surgery with him. I had a consult with him a couple months ago
- I am so happy to have found a doctor I trust! I've been told I have
"microscopic endo" and haven't met any other doctors who thought they
could do anything but Lupron. I looked at my lap photos and thought I
saw weird stuff, but my doctors all said "they look great!" When Dr.
Cook looked at them, he picked out the same places I had seen, and then
some. Okay, that sounded kind of stupid, like I think I'm some kind of
pathologist - I know I'm not, but I also know I saw weird blistery
looking places, etc.
Please come back and let us know how your surgery goes! How did you find
Dr. Cook? Just curious - and I really do think he is going to help you
a lot. Also, is insurance covering any of it? Insurance is a big issue
for a lot of women with endo - especially the ones who can't get it
because of their "pre-existing condition" and women stuck in HMOs that
don't want to send them to a specialist.
Good luck with everything!
At Fri, 15 Dec 2006, Katya wrote:
>
>Hi Everyone,
>
>First, I'm heavily medicated so this might not flow very well and it
>might seem random. Anyway, I don't think I've posted here before, maybe
>once or twice, I don't really remember.
>
>My name is Katya. I have endometriosis and in a week I will be having
>my fourth surgery trying to get rid of it. I've already had a
>hysterectomy and oopherectomy and even after that the endo has come back
>strong and hard. This will be my third surgery in one year trying to
>get rid of this endo. I'm on heavy pain killers, dilaudid, and I've
>been in bed over a week now from pain and then the pain killers so I've
>been playing with my website, since that's all I can really do. I'd
>like to share it with everyone. I'm pretty proud that I could make it,
>I'm trying to keep a little productive so I've been teaching myself how
>to work with Flash. Here's my web address. I'd love it if people went
>there and left me messages in my guestbook! http://www.endo.birkana.us.
>I don't know if it's ok to put links here but if it's not, I supposed
>someone will tell me. I'm so medicated that it's hard for me to
>remember and read up on ever rule.
>
>Anyway...I've had to cancel my life again. After my oopherectomy, where
>they found lots of endo, I believed I was better and that it couldn't
>come back. So, I went back to work, started school full time, started
>volunteering for a non-profit that helps survivors of childhood sexual
>abuse, started meeting new people, started a dance class to begin
>putting my body back together. And then, it all came back and I'm back
>in bed and have had to drop out of school and can no longer work etc.
>I'm so disappointed! It worries me that I'll never get rid of this endo.
>I frantically searched for a specialist because all my other docs have
>told me they can't help me anymore and have thrown up their hands. Dr.
>Cook is doing my surgery on the 21st. I've been really scared about it
>but the more I talk with his staff and I see that they believe me and
>what they suggest and do for me really works, the better I feel. I want
>to share my experiene with Dr. Cook so that anyone out there who's
>suffereing like I am can know that there are other docs out there who
>really know how to help and take us seriously. His website is
>http://www.pelvicpain.com.
>
>Anyway, I'm keeping a daily journal on my website along with playing
>with the graphics etc. I wrote a summary of my story there, which is
>more like the highlights of what's happened. I'm sure anyone with endo
>knows that if they were to try and talk about how horrible and
>dibilating it makes every day, well, it simply would be too long and too
>hard to do.
>
>I guess that's all for now. My head is spinning and I think I need to
>go back to sleep again. Man! I am so thankful for these pain killers! I
>may be completely useless and brain dead, but the pain is virtually
>gone. What a huge relief! It really helps with the waiting game.
>
>I hope my story will end well and I can tell about what worked for me so
>other women who are suffering with endo...maybe I can help with info
>about other options.
>
>Sincerely,
>Katya
>http://www.endo.birkana.us
>Dr. Cook...http://www.pelvicpain.com
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