Re: ? For those of you with endometriomas
From: loretta (anonymous@obgyn.net)
Fri Dec 8 10:50:37 2006
At Fri, 8 Dec 2006, Trudi wrote:
>
>A couple of weeks ago, I went to emergency with severe 10++ pain. Doc
>thought my endometrioma had leaked a bit. I told gyne about it and he
>said to just take lots of NSAIDS if it happens again because it just
>causes lots of inflammation. My surgery is not until April. Well, it
>happened again last night, but was a gradual build up of pain. I was
>able to sleep, but it woke me at 5:30 and was severe again. Pain is
>under control now, so my question is: if my cyst is leaking, is that
>going to create more problems, such as adhesions? Has anyone had an
>endometrioma actually rupture? I can't imagine!!!!
>
>Thank you!
>
>--
>-Lap for endometrioma on left ovary 1999- gyne
>"didn't get all the endo"
>-Full hyst and bso booked for April 2007 due to
>endometrioma on right ovary, pelvic varices and who
>knows what else is hiding in there!
>
--
Hi Trudi,
I am sorry you are in so much pain, endo is awful and many of us get lots of cysts
too, and that on top of everything else can be unbearable. I get many of them, I always have,
I can't tell you the number of times I have had to have them operated on, and how
many I have had to just leave to work themselves out, which is where I am at
at this moment. I am stageIV+endo, and now inoperable due to the amount of severe adhesions,
so now when I have them, I have no alternative but to leave them to do what they
will. At the moment I have one on each ovary, which is really painful as you know, the
one on my right ovary I have had for months, it goes up and down, extremely painful,
then it lets off some fluid and feels better for awhile, then it happens all over
again.
I have had them burst in the past, and many of them do without us even knowing, I
am told that sometimes we have them and don't even know it, or, we have them and only feel
the pain as they are "bursting", they get large and when they can hold no more fluid,
they "pop", or leak, the pain comes from that happening, as well as any fluid settling
in our abdomen, free flowing fluid is not normal in there, (one reason why endo is so
painful as the blood settles in our ab), so it is painful, but
our bodies quickly absorb that fluid and the pain subsides. On few occasions it can
become infected, or severely inflamed, and that can cause adhesions, or if you
get many of them, that too can cause them, but small cysts are somewhat normal,
it is when they get large that we take concern and keep and eye on them,
or when they turn into "chocolate cysts" and such, then they may have to be
operated on to get then under control, others can get way out of control and need emergency surgery,
so it is best to get all ab pain thoroughly checked out.
NSAIDS are the usual course of treatment I am given. as they do help the inflammation, even if they
don't feel they are helping the pain, take them anyway if you can b/c bringing down
the inflammation is important to help counter scaring.
I hope that helped somewhat, I wish you good luck, Happy Holidays
and the best in your upcoming surgery.
Health'n'Healing, Loretta
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