ENDO Messages for December, 2006: Re: could I have endo?

Re: could I have endo?

From: D (anonymous@obgyn.net)
Mon Dec 4 12:29:31 2006

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In reply to: Christy: "could I have endo?"

Christy -

please don't rush into this lap just because of your insurance deductible! You didn't say what day it was, but it's going to take at the very least a week to recover, probably a week or two more after that so the chances that you'll be feeling up to Florida are unfortunately slim.

But maybe more importantly, you need to talk to the doctor directly before you have surgery - you should make sure this ob/gyn is going to be able to thoroughly remove all of your endo. Have you asked her if she can remove it from your bowel or bladder or other difficult areas, if she finds it there? Or will she have other specialists there who can deal with that? Otherwise, you could be looking at a second surgery. How is she going to remove the endo, by excision (cutting it out) or laser ablation (burning it off). If she burns it off, it is more likely to come back sooner - surgeons can't accurately judge the depth of the lesions when they are burning it, and often don't go deep enough, leaving endo to come back. If they want you on Lupron after the surgery it is a good indication that they do not trust their own skill to remove it all.

Endo is serious - I think it's sucky that the NP scheduled your surgery and your doctor doesn't believe you about your pain levels. Have you considered trying a new doctor? I know it's a huge hassle to find new doctors, but endo is complicated, and difficult to treat, and a good doctor will admit that and refer you to an endo specialist. I'm going through this now, and while it takes a lot of time and energy, I've finally found an ob/gyn who made an out of network referral for me. (I had other ob/gyns who were either ignorant or they lied to my face and told me they could not do an out of network authorization, so you should find out from your insurance how it works for you.) I'm not dancing in the street yet because it hasn't been approved yet, and I don't know much about the doctor he's referring me to (Andrew Brill, if anyone knows him please share!). I want a referral to Dr. Cook in Los Gatos, but the gyn doesn't know him, so I'm going to work on my PCP about that.

Sorry I can't be more positive about your doctor, I do hope some of this helps and you find relief.

Best, D.

At Sun, 3 Dec 2006, Christy wrote: >
>Hi. I am new here and am looking for information. Sorry this is going
>to be very long!! Within the past 6 months I have been experiencing
>quite alot of pelvic pain. I have felt like my ob/gyn doesn't think
>that the pain is as bad as I have been describing. It all started when
>I was having pain in the upper and lower abdomen. I suspected
>gallbladder for the upper pain, but test didn't show stones so I went to
>my ob/gyn to check on other causes. She found a rather large cyst on my
>ovary, which actually ruptured while she was examining me. Further
>tests showed that my gallbladder was the cause of the upper pain and I
>had it removed. I have since had 2 more cysts on my ovary. The pelvic
>pain has only gotten worse over time. It starts mid-cycle and ranges
>from mild to really severe menstrual cramps. I also have lots and lots
>of rectal pressure (to the point that it hurts to sit). My bladder also
>hurts when it is full, along with hip and leg pain and intense lower
>back pain. I pretty much hurt from ovulation to the end of my period. 3
>months ago my dr. talked me into getting an IUD because I have always
>had heavy periods. It has not changed my pain - maybe made it worse.
>Since then, my periods have been about 15 days. I called the dr. last
>week because the pain was so bad. I got in to see the n.p., who talked
>to the dr. They have scheduled me for a lap in a couple of weeks.
>Please give me any advice you have on what to do. I want to have the
>lap if I need it before the end of year (have already met all insurance
>ded), but I am scheduled to go on a big family trip to fla. over
>christmas and don't know how long it will take me to recover from the
>lap. But I don't think I can enjoy the trip as I am now anyway. Sorry
>to vent!!

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In reply to: Christy: "could I have endo?"

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