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Re: Bad pain even after two Vicodin - normal with endo?From: Sherry (anonymous@obgyn.net)Sun Dec 3 11:04:21 2006
At Sat, 2 Dec 2006, anonymous wrote: > >That much pain can be "usual," yes. Vicodin barely touches my pain - >I'm on a fentanyl patch and percocet, and I still sometimes have pain >that puts me down on the couch for days at a time. I'm also in pain all >month long, and besides the pelvic/abdominal, get pain down the >inner-front part of my thighs, and some lower back pain, too. And a lot >of nausea, and some vomiting - the nausea can actually be worse than the >pain. > >About the possibility of bowel endo - colonoscopies won't show it unless >it's gone through the bowel wall, which is rare. Usually it's on the >outside of the bowel. It also won't typically show on MRIs. I don't >understand why your surgeon didn't remove the endo if he saw it? What >method did he use, laser ablation (burning it off), or did he excise it >(cut it out)? > >Did the urologist test you for interstitial cystitis? That might account >for the bladder issues you've had. If not, you might want to ask a >doctor about that. > >Hope this helps! > >At Sat, 2 Dec 2006, Michelle wrote: >> >>I have been diagnosed with endometriosis for about fifteen years now. I >>had a laparascopy in 1994 and 1995 and then got pregnant with my son and >>two years later with my daughter. I did okay without pain for a while, >>but then had a reoccurence in 1999. I had another laproscope, and my >>doctor feels that I also have adenomyosis. My pain then was right over >>my bladder and felt like rocks were scraping each other in my bladder. I >>could have sworn I had a bladder infection, but didn't. Early on and >>throughout I have been to a urologist and gastroenterologist. I have >>had two colonoscopies, one because during gallbladder surgery, my doctor >>saw what he thought was endometriosis on my colon. He also took my >>appendix due to endometriosis during that gallbladder surgery. I just >>had another laproscopic procedure on September 22 of this year. I have >>been in pain every single day since. My pain is worse before and after >>my cycle, even worse than while on my cycle. I get terrible low back >>and tailbone pain and pain down my legs and the usual frontal pelvic >>pain. I am sitting here now in horrific pain that I awakened with >>around 5:00 a.m. I took two Vicodin and I am still in pain. It only >>took a very little edge off. The other day the pain was so bad that I >>took two Vicodin and two Aleve (three hours after the Vicodin) and I was >>still in pain. Is anyone elses pain this bad and constant?? I even went >>to a spinal specialist just to be sure I didn't have some tumor or >>something on my spine. I had an MRI, but it was okay. I guess it is >>just hard to accept that anyone can be in this much pain and not be in >>ICU or something. Is this kind of pain usual with endo??? >> >>-- >>Michelle >> I have been there and had to have a supracervial hysterectomy and now suffer every now and then from painful scar tissue. I can only offer you this one bit of advice, check out this new pad called EndoFEMM (spelling?) thru the Endometriosis Research Center site, http://www.endocenter.org. It helps me even to this day. I am able to get up and take this pad to work, hide it underneath me and it really helps me get through the day. At times, I also suffer from IBS and found out that the heat also calms my bowel down and reduces even more pain. I guess the bottom line is, it helped me and gave me relief. I hope your journey ends as no one should have to live in such debilitating pain.
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