ENDO Messages for December, 2006: Re: confused

Re: confused

From: anonymous (anonymous@obgyn.net)
Sat Dec 2 21:31:44 2006

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Previous message: har: "Re: endo and you tube"
In reply to: Laurie: "Re: confused"

First of all, you do not have to take Lupron, or any other drug! It is totally your own choice!

I suggest looking for an endometriosis specialist. Here are a few websites that may help:

http://www.pelvicpain.com/ http://www.centerforendo.com/ http://www.endometriosistreatment.org/ http://www.endoexcision.com/

All of those sites have a lot of very helpful information about endo and I'm sure other women here can recommend others - although doctors who are truly skilled and experienced enough to treat endo successfully are sadly uncommon. Most OB/GYNs are not qualified to treat endo.

It's horrible that your doctor told you that your endo couldn't be removed from your bowel - what she should have said was that SHE couldn't remove it. She should have had a bowel surgeon working with her, or she should have referred you to a doctor who COULD remove it. It is definitely possible to do.

You are doing the right thing - learn as much about endo as possible, and seek out better doctors who will help you. You should also get a good understanding of how your health insurance works, because getting them to cover endo specialists can be tricky. Insurance companies generally regard all OB/GYNs as equivalent specialists, when they are not, especially when it comes to this stuff!

I hope this helps!

At Sat, 2 Dec 2006, Laurie wrote: >
>At Sat, 2 Dec 2006, g wrote:
>>
>>I think it depends, I had a lap in Aug. they removed some endo but not all of it, I am now on lupron. My doctor said I needed to be on a hormone and Lupron I thought at the time sounded good. I dont about that decision now, but I guess we will see. Good Luck to you!
>
>Im confused too ! Jeez I feel for you girl .In fact I feel for all of
>>you !Ive only been on the board a couple of days and I feel like Ive
>>known everyone here a lifetime. The information here is amazing!
>>
>>This question is to everyone .
>>
>>Do you have to go on LUPRON even after lap surgery? Is this depending on
>>the situation and individual?
>>
>>At Sat, 2 Dec 2006, Laurie wrote:
>>>
>>>I was officially diagnosed with endo in Aug through a lap. I am now on
>>>Lupron and havent had much luck, I have been bleeding and I feel like I
>>>have had no change in my pain. I am having all the other side effects
>>>of menopause, the hot flashes and mood swings. I do not like taking
>>>narcs all the time for pain and I cant seem to get anywhere with my
>>>Doctor. I am trying to read and learn as much as I can about this but I
>>>am getting confused. I feel very alone at times and as though people do
>>>not take it seriously. I am 24 and would like to have children in the
>>>future(within 3years) I am afraid of these hormones creating a whole new
>>>set of infertility issues. Also, the endo is wrapped around my bowel.
>>>My OB was unable to remove it b/c she said is was too dangerous. I have
>>>heard of specialists who can remove it?? ANY SUGGESTIONS???

Next message: Carolina: "Pregnant wirt endo"
Previous message: har: "Re: endo and you tube"
In reply to: Laurie: "Re: confused"

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