ENDO Messages for December, 2006: Re: ...any happy endings? ATTN: pam (a bit long)

Re: ...any happy endings? ATTN: pam (a bit long)

From: holly (anonymous@obgyn.net)
Sat Dec 2 15:34:15 2006

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In reply to: Pam: "Re: ...any happy endings? ATTN: Holly"

i tried the meds too at first, but mainly to control my symptoms after a thyroid storm landed me in the hospital for a while. i finally got to do the radioactive iodine in feb of 99. it didn't work the first time, so they had me do it again in october of 99. it worked that time. the way they knew was through bloodwork. they took blood every week it seemed. and when my levels were still indicating very hyperthyroid several months after the first ablation, the dr decided to try it again. the scary part is i ended up gaining 45 pounds after the second ablation. but i started out at 90 pounds (because of graves), so the weight wasn't that big a deal. i looked different though. i'm now down to 105 and hope to stay between 105-115. my thyroid still tends to bounce around a bit even now. i'm on synthroid to replace the hormone, but i get my blood tested a few times a year because sometimes i need to adjust. usually if my hair starts to fall out drastically, or i drop a lot of weight or gain a lot of weight, i know something's up. i've got a great dr who listens to me and will take me seriously when i tell him i think i need to adjust my meds. he'll do the bloodwork, and i'm usually right.

anyway, graves also affected my eyes. i have perfect vision still, but the muscles behind my right eye thickened because of the thyroid issue. so i have to see an ophthamologist and have a ct scan every year to make sure it's not getting worse. no big deal though. it just hurts when i roll my eyes when dh is talking. ;)

the best book to get is "the thyroid sourcebook." it's got some great resources about graves and about dealing with becoming hypothyroid after the ablation. i recommend you get a copy for her. and tell her until her levels normalize to stay away from salt, sodium, caffeine, seafood. it's hard as can be to stick with a diet like that, but all those things either contain iodine (which a graves thyroid will eat up way too fast) or a stimulant that will increase her already increased heartrate (that's how i ended up in the hospital).

wishing her all the best. graves is sucky, but it can be treated. she'll just have to stay on synthroid for maintenance and get regular checks. and when her levels are normal, she's going to feel like a completely new woman. seriously. her headaches will go away (i'm assuming she's having them), the bowel issues will stop, the joint pain will finally be gone, the shakiness, dizziness, nervousness, all of it will stop, and she'll feel like a million bucks!

give her my regards.

(((Hugs))) ~holly

At Fri, 1 Dec 2006, Pam wrote: >
>Holly,
>
>I was reading the forum and I noticed that you said that you had Graves
>Disease. I have a cousin who found out that she has Graves disease
>about 6 months ago. She is only 18 years old with a one year old.So she
>is going through a tough time. What kind of treatment did you have? She
>just started the treatment with the iodine. So we are waiting to see
>what will happen. She tried two separate medication before doing that
>and they made her sick (really bad). But this was the first time any of
>my family has ever heard of it so we don't really know that much about
>it. If can can me some information about what treatments you did and
>anything else it would be helpful.
>
>As for the pregnancy, you are in my prayers! I don't know much about
>that I just had my lap on Nov. 14 which confirmed that I have Endo. So
>I have many questions about conceiving myself. Still learning about all
>of that. You can e-mail me at precious21082@comcast.net.
>
>Wishing you all the best........Pam
>
>At Fri, 1 Dec 2006, holly wrote:
>>
>>my "happy ending" isn't here yet (been trying for our only child almost
>>10 years now), however, i have a few friends who also have endometriosis
>>and have gotten pregnant. a few on their own (about 6 months after
>>their laparoscopies) and two others through IVF. all of these women had
>>stage 3 to 4 endometriosis.
>>
>>i have mild endo, but it is all over the place. seems like everywhere
>>except tubes and ovaries. so the dr's really aren't sure if endo is the
>>only thing causing infertility in my case. i also have graves disease
>>that was treated in 1999 and have been diagnosed and treated for uterine
>>infections. there's a possibility of scarring in the uterus because of
>>the infections.
>>
>>anyway, no matter what happens, you'll survive. even when you feel like
>>you can't make it anymore, you will find that you can put one foot in
>>front of the other. you have to. i have a strong feeling that my
>>happiest ending won't happen, but i can be happy with what i have
>>anyway. sometimes i have to search for that happiness though.
>>
>>hang in there. i know how scary it is to face. but there is hope. my
>>friends are proof of that.
>>
>>(((((hugs)))))
>>~holly
>>mild endo and IC
>>
>>At Wed, 29 Nov 2006, Tara wrote:
>>>
>>>Are there any "Happy Endings" for anyone out there who thought hey would
>>>never get pregnant and did? If so, what helped you?
>>>
>>>Just curious to see...

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In reply to: Pam: "Re: ...any happy endings? ATTN: Holly"

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