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Re: Wanting some Advice and information!
From: Pam (anonymous@obgyn.net)
Thu Nov 30 21:18:13 2006
Thank you so much for the information. I will go to the web-sites you
suggested. I think it is good to do a lot of research just so you will
know to a point what to expect. I looked for information about the
difference in the Seasonique and Seasonale but couldn't find anything.
So thank you a lot for that. I don't like taking something that I don't
really know much about. Even if a doctor does think it is good for me.
I want to know at least what to expect especially if I have never heard
of it. He did not mention anything about adenomyosis. I think that
because of the problems I was having and my family history was why he
mentioned the information about the having a hysterectomy, which he did
say that would be a while away, hopefully. But it could happen since my
sister had to have one. I think he was just wanting to give me all the
information about the different options on how to deal with or control
Endo. He didn't really go into much details about it. Unless I did
misunderstand him when he was talking to me. I will ask about the
adenomyosis when I see him again. But I am pretty sure he didn't say
anything about it. But I got the impression of where he wasn't sure if
he was able to find all of it and just about all he did find was around
those nerves I mention, that he was really concerned about the Endo
coming back and causing more problems than what I had. I don't know.
But he did give some information about hysterectomy, he did of couse say
that it would be the last resort and he hoped that it would be a long
time away before we had to go into further details about it. Thank you
so much for answering all my questions. They did help me understand
some things better and I will check out the web-sites.
Thanks again...........Pam
At Thu, 30 Nov 2006, anonymous wrote:
>
>>First, about the Endo. I have done ton of research, I think maybe too
>>much because I expected the worst when I was told that I had Endo.
>>(although I only had mild or stage 1 of the Endo) I guess I was more
>>upset about there not being a cure for Endo. But, anyway, I realize
>>that there is no cure but since my GYN went in there and removed it, I
>>don't really understand why or how it can come back. So that is
>>question one.
>
>It probably comes back because your doctor did not remove it all. Some
>people believe endo is caused by "retrograde menstruation" - some of the
>uterine lining supposedly backs up into your pelvis. This hasn't been
>proven, nor disproven, but it is one of the reasons doctors try to stop
>women's periods when they have endo.
>
>Second, my GYN decided to put me on Seasonique, which I
>>am assuming is like Seasonale but I don't know much about it. Does
>>anyone else. (question 2)
>
>They are almost identical, but seasonique uses estrogen-only pills on
>the "breakthrough week" to limit bleeding, while seasonale uses
>placebos.
>
>from http://www.medicalnewstoday.com/medicalnews.php?newsid=44121
>"Under the SEASONIQUE extended-cycle regimen, women take active tablets
>of 0.15 mg of levonorgestrel/0.03 mg of ethinyl estradiol for 84
>consecutive days, followed by seven days of 0.01 mg of ethinyl
>estradiol."
>
>from http://en.wikipedia.org/wiki/Seasonale
>"Seasonale contains 30 micrograms of ethinylestradiol and 150 micrograms
>of levonorgestrel in each active pill. Each package has 84 active pills
>and seven placebo pills that are taken at the end of the cycle.
>Menstrual occurs when the placebo pills are used every 3 months."
>
>Because of this pill, I am suppose to only
>>have 4 periods a year. So by taking the pill, I cannot get pregnant of
>>course and I shouldn't have problems with Endo. Right? (question 3)
>
>Unfortunately, no. Many women get some relief from BCPs, but not so
>many get complete relief. They have helped me, but I still have a lot
>of pain and the pain still follows a monthly cycle, even though I'm not
>even spotting and I haven't taken a break for over a year.
>
>>Third, since I have or had Endo, doesn't that lower the chance of me
>>being able to conceive. I thought I looked up information about Endo
>>that stated if a woman had it she would have problems conceiving.
>>(question 4)
>
>According to the statistics, having endo does lower your chances. Sorry,
>I don't know the actual odds - but everyone is different, and a lot of
>the women on these lists have children!
>
>If that is the case, since we are pretty sure my GYN got
>>most of the Endo, would it not make sense to try to conceive now instead
>>of waiting? (question 5)
>
>I think so!
>
>When I saw my GYN (Nov 24) for my post-op, he
>>made my husband and I feel like we might want to have children sooner
>>but he really didn't say much about it. He did feel that I would
>>eventually have to have a hyster. to get completely rid of the Endo.
>>(like my sister) He was mainly concerned about where he found it at. It
>>was around some nerves around near my uterus and those nerves connected
>>to my back which was why he thought I had severe back pain. So does it
>>matter in a sense of getting pregnant where Endo is located? (question
>>6)
>
>Yes, it can block your tubes, which would obviously make conceiving
>difficult! But it sounds like he was concerned more because on nerves is
>a tricky place to remove endo. Did he mention adenomyosis? Because that
>would be a reason for a hysterectomy. Having endo elsewhere is not.
>
>I think I only have one more question, if or when it does come back,
>>will it come back in the same locations. I know it can spread to
>>different places but will it start back where it was? (question 7)
>
>Presumably not, if it was actually thoroughly removed.
>
>Sorry
>>just one more question, How is everyone else doing?
>
>Having a pretty good day, thank you!
>
>There's another endo support group on yahoo you might want to try:
>
>http://groups.yahoo.com/group/erc/
>
>You are definitely doing the right thing to research as much as you can!
>The choice of doctors seems to be the biggest problem most women have -
>getting to an endo specialist who really knows what they are talking
>about, and who is expert at excision - cutting the disease out.
>
>Good luck, I hope this helps!
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