ENDO Messages for November, 2006: Re: curring cysts on both of my ovaries

Re: curring cysts on both of my ovaries

From: Bulaone (anonymous@obgyn.net)
Thu Nov 30 20:42:43 2006

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In reply to: Catherine: "Recurring cysts on both of my ovaries"

Catherine, was the cyst removed earlier this year an endometrioma on the pathology findings? Did you have other endo in the pelvis? I'm assuming the other cysts have been found by an ultrasound...were you having symptoms or was this just a routine follow-up to the last surgery? A coulple of things...I too had a lap to remove cysts on both ovaries 1.5 years ago (along with what turned out to be level 4/5 endo throughout the pelvis). I recently requested a follow-up ultrasound and to my disappointment, a cyst had reformed on one of the ovaries the same size as was removed a year ago. I also have a number of follicular cysts in the ovaries (polycystic ovaries, without having the syndrome), but this one appeared consistent with an endometrioma. The surgeon said they have a 30% chance of reappearing...10% that a bit was left from the 1st surgery and 20% that it's a new formation all together. With endometriomas, they will continue to grow until you hit menopause (in my case another 13+ years) so the surgeon said we needed to remove it--two weeks post-surgery now. More endo was found in various locations and all that was seen was excised (with the exception of a small bit on the colon that was adhering that same ovary to the colon...they cut away a part of the ovary to free the bowel). There is always a chance that your cysts are not endometriomas, but if they continue to grow that is of concern. Are they causing symptoms? With anything, the concern with the continued growth is that it could be something nastier. I do think that hysterectomies should be the last resort, but certainly it's all about quality of life. At your age, menopause would be really early and the only way to decrease the chance of recurrence is to remove the ovaries and NOT use hormone replacement. It's the hormones that feed the endometriosis. At 38 with no plans for children myself, hysterectomy wasn't even presented as an option at this stage. I felt for me, it would be far too long to go without those natural hormones which reduce the risk of so many other problems (heart, stroke, etc). Make sure you are thoroughly happy with your Dr. and that if you have the surgery again, you are giving yourself the best possible chance in beating the disease by choosing someone who is very experienced. A number of posts on this forum discuss various drs. and their success rate. All the best to you Catherine.

At Thu, 30 Nov 2006, Catherine wrote: >
>Hello,
>
>I'm deeply troubled by my most recent diagnosis with multiple cysts on
>both of my ovaries. I had a lap surgery done on my right ovary in which
>a 4x5cm chocolate cyst was removed on 9/2/06. Then 1 month later 3
>cysts appeared, two are on my right ovary and I have one on the left.
>I'm not thrilled with the idea of having more surgery, but at the same
>time what other choice do I have? I'm not keen on the idea of surgery,
>but shouldn't it be the last resort? My last ultrasound showed some
>minimal growth, but do the cysts get larger with each menstrual cycle?
>
>Also do I have to have a hysterectomy to make the pain stop? Both my
>husband and I want children but at the expense of my health is it worth
>the risk?
>
>Sincerely,
>
>--
>Catherine
>

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