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Re: What to do with my endo?
From: Marita (anonymous@obgyn.net)
Wed Nov 29 17:03:06 2006
Bab, Dr Surrey cost $300 just for a consultation. I'm a student and I
only work part time. Do you know of any doctors that might be a little
cheaper that are in the LA area?
At Wed, 29 Nov 2006, Marita wrote:
>
>No, I do not know who Mark Surrey is. Is he a specialist also? I've had
>all my treatment and surgeries with Dr. Jacobs at Kaiser Panorama City
>(he is not a specialist, just an OBGYN)
>
>At Wed, 29 Nov 2006, anonymous@obgyn.net wrote:
>>
>>Dear Marita:
>>Dr. Redwine is a great choice. Have you already had a consult with Dr.
>>Mark Surrey in Beverly Hills? Who did this last lap?
>>
>>http://www.womenssurgerygroup.com/physicians/
>>
>>home page http://www.womenssurgerygroup.com
>>
>>http://www.endometriosistreatment.org
>>
>>At Wed, 29 Nov 2006, Marita wrote:
>>>
>>>Thank you ALL for your great advice. I am just really down/sad right
>>>now. I was really hoping that after this surgery the dr. would say
>>>that something had worked, that maybe it wasnt gone, but at least the
>>>same...not worse. But I am trying very hard to take all of your advice.
>>>I looked at Dr. Redwine's page and I am really considering sending him
>>>my history (i think its $125). I live in Los Angeles so Oregon wouldnt
>>>be that far to go. My dr. only burned off the endo I think (is that
>>>electrocauterization?)
>>>
>>>At Wed, 29 Nov 2006, anonymous wrote:
>>>>
>>>>I absolutely agree with Bab - go to an endo specialist!
>>>>
>>>>Also to Marita - you are only supposed to take a maximum of two 6-month
>>>>courses of Lupron in your lifetime, and you've already had 7 months of
>>>>it that didn't help. Please don't let the doctor push you into doing
>>>>Lupron again! Did your doctor remove the endo at your last lap? Did he
>>>>do excision, or did he burn it off? The best treatment available right
>>>>now is thorough excision, done by a specialist.
>>>>
>>>>You may have to fight to get the treatment you need, but please don't
>>>>give up!
>>>>
>>>>At Tue, 28 Nov 2006, anonymous@obgyn.net wrote:
>>>>>
>>>>>Hi:
>>>>>The best thing you two can do is to see an endo specialist. Women of my
>>>>>age were also told to take pills, etc. -- not good, not the solution.
>>>>>Some of the other women here on the forum and I have posted various
>>>>>websites which contain the names of endoscopic laparoscopic specialists
>>>>>who can excise the endo. The following websites can help educate you
>>>>>about your condition. The surgeons of the http://www.womenssurgerygroup.com
>>>>>and Dr. Redwine of http://www.endometriosistreatment.org are highly skilled at
>>>>>excising endo -- they are the cream of the crop. Check out the website,
>>>>>see which specialist is closest to you, give them a call.
>>>>>
>>>>>http://www.womenssurgerygroup.com
>>>>>
>>>>>http://www.endometriosistreatment.org
>>>>>
>>>>>http://www.geocities.com/endovictims/endodocs.html
>>>>>
>>>>>At Tue, 28 Nov 2006, Courtney wrote:
>>>>>>
>>>>>>Hi Marita.
>>>>>>
>>>>>>I am also 21 and a student dealing with Endo. I know exactly how you
>>>>>>feel. my lap was in june and they gave me lupron. it was a 3 month
>>>>>>shot that didn't relieve my pain for longer than 3 weeks. I never got
>>>>>>the second shot and i'm still getting hot flashes and night sweats. I'm
>>>>>>also on the continueous birth controll. I wake up in pain just about
>>>>>>every day. I'm constantly in pain and i hate it. No one understands me
>>>>>>and how i feel. i was working 2 jobs as well as school full time. now
>>>>>>i'm only working 1 job an school. but some days i feel like i can't do
>>>>>>it. I have emotional break downs. Nothing has help. My doctor wants
>>>>>>me to see a G I specialist to see if there is something else wrong. Just
>>>>>>know that you are not alone. If you want to talk my e mail is
>>>>>>Camarochic1524@comcast.net
>>>>>>
>>>>>>Hope you have a good night
>>>>>>
>>>>>>--
>>>>>>Courtney
>>>>>>
>>>>>>At Tue, 28 Nov 2006, Marita wrote:
>>>>>>>
>>>>>>>Hello
>>>>>>>My name is Marita and I am a 21 yr old student with endo. I am
>>>>>>>recovering right now from my second laparoscopic surgery/dc. After my
>>>>>>>1st surgery last year, my dr. put me on depo lupron. I did it for 7
>>>>>>>months (and it was horrible, I couldnt go to school, sleep, I couldnt
>>>>>>>handle the hot flashes or emotional instability)... After that I tried
>>>>>>>the continuos birth control, but because of my constant pain he
>>>>>>>suggested a 2nd surgery. Well I had that on Friday Nov 24th. and the
>>>>>>>Dr. told me that the endo was worse this time, he wants me to do the
>>>>>>>lupron all over again. I dont want to, it was hell, and it didnt even
>>>>>>>work for me. Any ideas on what to do? I'm ready to give up :(
>>>>>>
>>>>>>--
>>>>>>Alone in DE
>>>>>>
>>>>>>Courtney
>>>>>>
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