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Re: What to do with my endo?
From: Marita (anonymous@obgyn.net)
Wed Nov 29 16:51:47 2006
No, I do not know who Mark Surrey is. Is he a specialist also? I've had
all my treatment and surgeries with Dr. Jacobs at Kaiser Panorama City
(he is not a specialist, just an OBGYN)
At Wed, 29 Nov 2006, anonymous@obgyn.net wrote:
>
>Dear Marita:
>Dr. Redwine is a great choice. Have you already had a consult with Dr.
>Mark Surrey in Beverly Hills? Who did this last lap?
>
>http://www.womenssurgerygroup.com/physicians/
>
>home page http://www.womenssurgerygroup.com
>
>http://www.endometriosistreatment.org
>
>At Wed, 29 Nov 2006, Marita wrote:
>>
>>Thank you ALL for your great advice. I am just really down/sad right
>>now. I was really hoping that after this surgery the dr. would say
>>that something had worked, that maybe it wasnt gone, but at least the
>>same...not worse. But I am trying very hard to take all of your advice.
>>I looked at Dr. Redwine's page and I am really considering sending him
>>my history (i think its $125). I live in Los Angeles so Oregon wouldnt
>>be that far to go. My dr. only burned off the endo I think (is that
>>electrocauterization?)
>>
>>At Wed, 29 Nov 2006, anonymous wrote:
>>>
>>>I absolutely agree with Bab - go to an endo specialist!
>>>
>>>Also to Marita - you are only supposed to take a maximum of two 6-month
>>>courses of Lupron in your lifetime, and you've already had 7 months of
>>>it that didn't help. Please don't let the doctor push you into doing
>>>Lupron again! Did your doctor remove the endo at your last lap? Did he
>>>do excision, or did he burn it off? The best treatment available right
>>>now is thorough excision, done by a specialist.
>>>
>>>You may have to fight to get the treatment you need, but please don't
>>>give up!
>>>
>>>At Tue, 28 Nov 2006, anonymous@obgyn.net wrote:
>>>>
>>>>Hi:
>>>>The best thing you two can do is to see an endo specialist. Women of my
>>>>age were also told to take pills, etc. -- not good, not the solution.
>>>>Some of the other women here on the forum and I have posted various
>>>>websites which contain the names of endoscopic laparoscopic specialists
>>>>who can excise the endo. The following websites can help educate you
>>>>about your condition. The surgeons of the http://www.womenssurgerygroup.com
>>>>and Dr. Redwine of http://www.endometriosistreatment.org are highly skilled at
>>>>excising endo -- they are the cream of the crop. Check out the website,
>>>>see which specialist is closest to you, give them a call.
>>>>
>>>>http://www.womenssurgerygroup.com
>>>>
>>>>http://www.endometriosistreatment.org
>>>>
>>>>http://www.geocities.com/endovictims/endodocs.html
>>>>
>>>>At Tue, 28 Nov 2006, Courtney wrote:
>>>>>
>>>>>Hi Marita.
>>>>>
>>>>>I am also 21 and a student dealing with Endo. I know exactly how you
>>>>>feel. my lap was in june and they gave me lupron. it was a 3 month
>>>>>shot that didn't relieve my pain for longer than 3 weeks. I never got
>>>>>the second shot and i'm still getting hot flashes and night sweats. I'm
>>>>>also on the continueous birth controll. I wake up in pain just about
>>>>>every day. I'm constantly in pain and i hate it. No one understands me
>>>>>and how i feel. i was working 2 jobs as well as school full time. now
>>>>>i'm only working 1 job an school. but some days i feel like i can't do
>>>>>it. I have emotional break downs. Nothing has help. My doctor wants
>>>>>me to see a G I specialist to see if there is something else wrong. Just
>>>>>know that you are not alone. If you want to talk my e mail is
>>>>>Camarochic1524@comcast.net
>>>>>
>>>>>Hope you have a good night
>>>>>
>>>>>--
>>>>>Courtney
>>>>>
>>>>>At Tue, 28 Nov 2006, Marita wrote:
>>>>>>
>>>>>>Hello
>>>>>>My name is Marita and I am a 21 yr old student with endo. I am
>>>>>>recovering right now from my second laparoscopic surgery/dc. After my
>>>>>>1st surgery last year, my dr. put me on depo lupron. I did it for 7
>>>>>>months (and it was horrible, I couldnt go to school, sleep, I couldnt
>>>>>>handle the hot flashes or emotional instability)... After that I tried
>>>>>>the continuos birth control, but because of my constant pain he
>>>>>>suggested a 2nd surgery. Well I had that on Friday Nov 24th. and the
>>>>>>Dr. told me that the endo was worse this time, he wants me to do the
>>>>>>lupron all over again. I dont want to, it was hell, and it didnt even
>>>>>>work for me. Any ideas on what to do? I'm ready to give up :(
>>>>>
>>>>>--
>>>>>Alone in DE
>>>>>
>>>>>Courtney
>>>>>
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